Project Jennifer

February Photo-a-Day Challenge

2012-01-25T07:02:00.000-08:00

I ran across this challenge on Windshield Diaries; I have been following her photos on Twitter and would like to join in on the fun next month.

How to take part in February photo-a-day:

1. Using the list as inspiration, take a photo each day.
2. Share it on Instagram or Twitter using the hashtag #FEBphotoaday. You can also share on your blog or on Facebook ... or even keep the photos privately for yourself.

3. Check out other people's photos and like them or comment on them.

CAPow from Windshield Diaries made a comment that without this challenge most of her daily pics would be of her pup Emmett. That hit close to home since most of my cell photos are of Spyke and Liberty. While super cute and hours of entertainment, I would like to expand my daily photo options.

Join me and follow my photos on Twitter, @Jenn_Ziegler.

Lately

2012-01-20T20:35:00.000-08:00

January has been an interesting month so far. A little stressful, but mainly just blah. I want the month to be over and for my new year to begin. Since my birthday is February 1 decided this year to make "resolutions", set goals, and update my mission in life around my New Year/Birthday.

Back in September I began hand writing in a journal and set many goals for myself. Some goals have been met, some are works in progress, and others did not happen, but will be reintroduced with my fresh vision for my 32nd year of life, as I know it.

Here are a few photos from the last weekend/week:

Car rides with the Bostons (followed by walks)

Homemade fresh blueberry and lime margaritas, yummy!

Friends and Wii!

Looking forward to a quiet weekend, more friend time, spin tomorrow am, and the birth of my BFFs little one. Oliver is due next week, if he does not come on his own, my bestie will be induced on my Birthday!! Exciting. Cannot wait to meet Baby-O.

Weekend in Pictures

2012-01-09T21:20:00.000-08:00

A few highlights from the last weekend:

Painting nails with a little friend

The Simpson's Clue and pizza night, Friday

Mailed letter from me at Camp Esperanza, 6 month(ish) later, goal reminder...I miss camp, but it is only a half year away!

Afternoon snack

Palm Tree Christmas lights, so SoCal

BFFs

Overall this weekend was super mellow and only a little busy. I babysat Friday, we cleaned our house on Saturday...just for us, and Sunday we hung with a good friend and BBQed.

September/October/November Retrospective

2012-01-05T17:15:00.000-08:00

These 3 months were probably the craziest months of the year, but I had lots of fun and probably learned the most during this time.

September

Boyer's (my "first job") Reunion

Boyer's was a chain/mom and pop coffee shop where I worked with my best friend and a group of misfits from the area (some from school, some from the neighborhood, etc.). There was a core group of us and some of us reunited at my good friend Kristy's house. Memories, so many fun and funny times were had at this little coffee shop, even our bosses made the reunion. We were like Clerks meets Empire Records crossed with a little of our own specialness. I feel very lucky for this experince as it led my to my next job and meeting many amazing friends.

Also in September I coordinated a Town Hall Meeting with State Senator Ed Hernandez on Osteoarthritis and Exercise. With help from another Program Director and our CEO we secured speakers, location, and all logistics within 6 weeks. It was a whirlwind of an event, but in the end it was successful and neat to work semi-closely with one of our State Senators and his staff.

Lastly, I hosted a fun night for one of my favorite girls, check it out here.

October
Mid-October hubby and I threw a Camp Esperanza Counselor Appreciation BBQ. A lot of volunteers from our Teen Leadership Session of camp and their loved ones were able to make this laid back afternoon filled with food, drinks, and games! We played badminton in the backyard for hours...even in the dark. I was having too much fun to take photos.

The next weekend the Arthritis Foundation hosted our 2nd Annual Arthritis in PrimeTime, a conference for young adults with arthritis and their loved ones. The night before the educational and general sessions, we hosted a pajama party in one of the hotel suites by the 3rd floor pool. Overall this conference was a huge success and totally re-inspired me (again) about my purpose in life.

Pajama Party fun!!

My infusion buddy wins!

Don't have words, but these two rock.

Keynote Speaker, Comedian and Doctor Matt Iseman

November
This month was filled with a wedding (2nd one hubby performed for the year), a baby shower for my BFF, major life decisions, cram session for a test, and a nontraditional Thanksgiving. I was a better blogger this month, so I think I captured a lot here on this ol'blog.

Happy 2012!

2012-01-04T17:15:00.000-08:00

North Coast view from Trinidad

So the New Year was celebrated while out of town, visiting family in Northern CA. We had a lovely visit, but I really did not take care of my body. I actually have not been taking care of me for awhile; on the medication side, YES, but food intake and activity level, NO. So obviously a goal for the New Year and always, to take care of me. As usual the physical side is creeping into the emotional/mental side and I am not the happiest camper right now (a few unexpected financial issues are not helping either). At least I know what needs to be done.

I'll finish off the last retrospective post of 2011 by this weekend as I really took advantage of checking out over the holidays. Looking back, 2011 was a really great year and it feels nice reliving some of the highlights.

Back to American Horror Story and a much needed workout (already have my workout clothes on).

June/July/August Retrospective

2011-12-26T02:06:00.000-08:00

Summer is my busy time at work, like real busy...as a Program Director overseeing a few summer camps for kids with arthritis I am inundated with paperwork, logistics, follow-up, stress, and, most importantly, amazing experiences while at camp. The actual time spent at camp is worth all the craziness leading up to it. And like I mentioned before camp cannot be described here in this blog. Therefore, I highly recommend volunteering at a camp like Camp Esperanza. Any camp dedicated to kids with chronic diseases is a camp worth checking out; there are programs worldwide!

JUNE
This month we headed up north to Arcata, CA to witness our twin niece and nephew graduate high school and their younger sibling graduate from 8th grade. I am so glad we were able to make the trek. A little recap of June here.

Fun little hike in Northern CA with Grandma Jessie, Josh, Erik, and my hubby.

JULY
While summer is busy, July is uber busy.I took off for two summer arthritis camps: Joint Adventure Camp in San Diego and Camp Esperanza @ The Painted Turtle. The Painted Turtle is part of the Paul Newman's Hole in the Wall Gang Camps, which are worldwide and all designed for kids with chronic diseases.

The cabins are the cutest camp cabins ever.

AUGUST
One of my favorite months. August is the month that holds our Teen Leadership Session of Camp Esperanza at Esperanza's original location near Big Bear, CA in the mountains. I do A LOT of prep work for this session, along with some very dedicated volunteers. This session is mainly staffed and planned by volunteers and we have so much fun planning everything, especially the leadership component. Photo overload below. Could not just pick one (lots of me, as I cannot put pics of the campers on the blog).

Opening Campfire

Snake love

My awesome co-directors, Natascha "Thunder" and Matt "Pine Nut"...I'm Sprinkles at camp by the way;).

Me, Doc Wendy "Ginger", and volunteer Athena "Granola", reffing the "Quidditch Match".

Closing Campfire

Shaving Cream, a camp must

One of our first "graduating" campers of the Teen Leadership Program

Camp Leader Stephanie "Frizztastic" showing off her Camp Hoodie

Amazing staff/volunteers waiting for the sun to rise (Thunder, T-Dizzle, and Seadog)

This year camp ended just in time for me to make it home to celebrate my 10th wedding anniversary on August 25th! Overall a great summer that lead into an amazing fall!

Quotes

2011-12-21T17:55:00.000-08:00

I like to read a few blogs (and their owner's tweets) during my down time and I find little pieces from all to carry with me.

During the last year I collected a few quotes from some of my favorites...

"Life is tough.....I am tougher." On life and hard times, striving to get through. Found here, but not sure which post, Talk 2 the Trees.

"I am worth the fight." On exercise and taking care of and loving yourself, Moorea Seal.

My grandpa: "I'm from the 1930's but this is what I see: you have great values in your heart & you want to show them on your skin. <3" On tattoos, tweeted from one of my favorite bloggers Kyla Roma.

"My darling girl, when are you going to realize that being normal is not necessarily a virtue? It rather denotes a lack of courage." Alice Hoffman; first read at The Wild and Wily Ways of a Brunette Bombshell.

Not on a blog, but "found" inspiration, while at a wedding with good friends:

"We are so fragile, and easily broken
But I'll try my hardest to put you back together
If you do the same for me."

March/April/May Retrospective

2011-12-15T14:22:00.000-08:00

In current news, I just started a Pinterest and I am a little obsessed...it is so neat to gather all my online "likes" in one place and see what others are interested in too! Follow me (only if you want, of course) if you have one: Pinterest

This article was a recent discovery and a very timely one at that: A Message to Women From a Man: You Are Not "Crazy"

Onto my year in review:

MARCH
March started off pretty well in Washington DC, advocating my little heart out and making sure 50 volunteers (advocates) understood their mission, learned a bunch, and had fun in the process. While in DC my knees decided to swell and at one point I felt like I could not get out of bed. Luckily my arthritis BFF was by my side and she totally understands, we powered through, and room service helped tremendously!

Capitol Hill

Long Time Arthritis Buddies

After a couple cortisone injections I thought I was good to go and headed off for a family cruise on the Disney Wonder. The cruise was splendid, unfortunately my flare returned with full force somewhere between LA and Cabo San Lucas. Thankfully I did not have to do much and returned home with two very swollen knees, again. In addition, the joints between my ribs decided to flare (as they say, there's a first for everything). If felt "lovely" getting up from a lying position and trying to take deep breaths.

Me, Pluto, my bro-in-law, and niece.

APRIL
The mother of all arthritis flares followed me into April when I was finally approved for new medication. Fortunately the new meds worked, but unfortunately, they took around 6 weeks to see major improvements. Thankfully the new biologic medication is still working and I have control over my disease.

April also included a weekend at Arthritis Family Camp at The Painted Turtle (fun, fun, and more fun!) and the beginning of the Arthritis Walk Season. I think this is also the month my bestie told me she was PREGNANT (happy dance!) with Baby Oliver.

My bestie all pregnant.

MAY
More work, lots of Arthritis Walks and finally relief from good old Arthur. Enjoyed an afternoon at Magic Mountain with my good friend Kristy after we worked the advocacy both at the Magic Mountain Arthritis Walk. That was a lot of fun.

Fun at the Magic Mountain Arthritis Walk

Jan/Feb 2011 Retrospective

2011-12-04T13:01:00.001-08:00

Since I was not much of a blogger this year, I decided to write a little recap of 2011 during the month of December.

JANUARY
The year started off with a bang. On January 1st, 2011 my hubby and I took off on a 2-week cruise from LA to Miami through the Panama Canal. Hands down best vacation ever, but even more so, this trip was so educational and really assisted in setting some future goals for my hubby's profession and schooling. We were part of a school group and almost every port visited we turned into a history lesson, except Cabo (we planned other ports and enjoyed margaritas) and Hualtuco (we swam in the warm Mexico waters and enjoyed Coronas). Our favorite ports were in Guatemala (very beautiful, explored Antigua, Guatemalans are the NICEST), Costa Rica (again very beautiful, we saw the most magical sunset ever), and Columbia (rich in history, especially around Spanish "discovery"). We loved going through the Panama Canal and enjoyed the Key West atmosphere to finish off our adventures.

A few photos:

Finally learned to play chess with strategy! We played almost everyday after dinner.

Tehuacalco Ruins outside Acapulco, a fairly recent discovery

Beach Day in Hualtuco

Costa Rican sunset, Por Vida!

Columbia, on top of the Castillo San Felipe de Barajas

Downtown Cartagena with our Colombian hats on; it was VERY sunny there.

Guatemalan Ruins in Antigua

More highlights:

Meeting our new, good friends, David and Alma (and baby Sarah, who was in the womb). David and Alma were also part of the school group and we explored together in almost every port. Alma spoke fluent Spanish, which was very helpful getting around in Mexico, Central and South America.
Seeing a volcano erupt in Guatemala, which is pretty common, but still neat to see in-person
Experiencing a SUNRISE over the Pacific from the WEST. This happens in only one spot, the Panama Canal.

So January was amazing and we kept a handwritten journal, as we always try to do on vacation, to be able to look back on our adventures.Many thank yous to my mom for enabling us to go on this trip of a lifetime.

FEBRUARY
I turned 31 this month, had a traditional birthday lunch at Old Tony's on the Redondo Beach Pier with family. My hubby and I also celebrated the day we met, February 15, 1997 in lieu of celebrating Valentine's Day. At the end of the month I flew to Richmond, Virginia to hang out with my arthritis BFF's family before heading the Washington DC for the Arthritis Advocacy Summit.

Redondo Beach Pier

The historic Jefferson Hotel in Richmond, Virginia

February is also the month a horrendous arthritis flare up set-in.

Camp Esperanza

2011-11-27T20:35:00.000-08:00

Camp Esperanza is the first sleep-away summer camp for kids and teens with juvenile arthritis, formed in 1985. Currently, I am the Program Director in charge of Camp Esperanza (best job ever!). I also attended this camp as a child and young teen and returned during college as a volunteer counselor.

As usual, I cannot find the words to express how much this camp means to me. Here is a video we made over the summer to show to potential donors, new families and volunteers. I got to be behind the scenes almost the whole time and had lots of fun, only stressed a little.

I do make an appearance on camera and I did pronounce arthritis "awrthritis". Maybe it's because I think arthritis can be "awe"-some, at times; or maybe it's because I did not have the time for speech therapy, because I was busy in physical and occupational therapy instead. You can find me, briefly, at age 9 and 26 in the video as well.

Enjoy!

Thanksgiving with NO Turkey

2011-11-25T08:57:00.000-08:00

Day before Thanksgiving I spent with my nieces and nephew (and Sister and Bro-in-law). We played Just Dance, shopped, ate, hosted an art contest on Facebook, and played more, Apples to Apples Jr. edition! Fun times!!

Contest (left to right) Cade, Me, Madison, and Taylor. I am pretty sure my nieces Madison and Taylor tied as the Winners!

Photo time: we look like giants in front of their Christmas Tree.

On Thanksgiving my hubby and I decided to spend the day together just us and the pups. We took a drive along the beach and enjoyed a lovely meal at Original Tommy's in Long Beach. This is our favorite bad, but good quality food to enjoy once in awhile.

Watching the beautiful sunset.

Sunset Photos

UN-Thanksgiving Dinner

The day ended with Pumpkin Pie at my mom's and seeing one of my favorite cousins ever, Jimmy. Jimmy has actually been adopted by another wonderful family, but his dad (my uncle) is still in his life and Jimmy gets to spend some holidays with us. Before he was adopted, my Grandparents raised Jimmy for the first 5 years of his life and I spent lots of time at my Grandparent's when I was younger, so Jimmy and I are pretty close. I love this little dude so much!

Jim Bob and me

Happy Thanksgiving

2011-11-24T07:31:00.001-08:00

My little list for Thanksgiving; I'm thankful for:

Days off
Starbucks IN Targets
Trying new things (completed a new-to-me High Ropes Course and went Rock Climbing!!)
1st ever Rheumatic Diseases Fall Family Weekend Camp
Having fun with friends and family
My little blog
Setting and obtaining goals
Watching lots of movies (via Netflix, of course!)
Reading good books
My little family; my husband, pups, and me are enjoying a nice quiet day together and plan to head for a coastal drive with a Thanksgiving "picnic".....IF Theo's cold cooperates.

Have a very Happy Thanksgiving everyone!!!

ABC's about me

2011-11-12T19:46:00.001-08:00

Age: 31

Bed Size: Queen, but one day would love a CA King!

Chore you Dislike: None really; it is just finding the time and energy for them.

Dogs: Yes please! Man's best friend and co-pilot.

Essential Start to your Day: Coffee, breakfast, and shower; preferably in that order.
Favorite Color: Red

Gold or Silver: Silver or white gold
Height: 5' 9" ish

Instruments you Play(ed): Piano, Finger Tambourines, and air drums.
Job Title: Program Director at the Arthritis Foundation

Kids: 2 Boston Terriers, Liberty and Spyke
Live: Southern California

Mother's Name: Katy (not Kathy)
Nicknames: Jenn or Jenny

Overnight Hospital Stays: Intense Physical Therapy as a child/preteen, Appendicitis, Bi-lateral hip arthroplasty
Pet Peeves: Stupidity, someone who is unsympathetic, people who send mean emails

Quote from a Movie: I just threw up in my mouth a little bit.

Righty or Lefty: Lefty and PROUD!

Siblings: Sister <3 and really great brother-in-laws and ex-sister-in-law
Time you Wake Up: 6ish

Vegetables you Don't Like: Sometimes mushrooms

What Makes you Run Late: LA traffic and sometimes my arthritis

X-rays you Have Had: Most joints, teeth, tummy

Yummy Food you Make: Bacon fried rice, mini lasagna, mac-n-cheese, roasted veggies, waffles, pancakes, homemade marshmallows

Zoo Animal Favorite: Elephants; I have loved IEs (my nickname for elephants) for as long as I can remember. They are gentle giants and so smart. Prefer not to see them in captivity unless they have lots of room to roam and a family unit.

Giving Thanks

2011-11-10T21:11:00.001-08:00

A little list, 11-10-11

Husbands that wear matching PJs with me
Cute Boston Terrier Pics
Fun times with old and dear friends, celebrating major milestones in life
Taking major steps towards Grad School! Fight On!
Standing up for me
"Free" lunches
Hello Giggles
The Office (U.S.)
Sleeping more than 3 hours a night
Peppermint Soy Mocha
Marines, especially my Father (in-law); Happy 236th Birthday U.S.M.C.

Walk the Line....

2011-11-08T07:09:00.000-08:00

Right now I am enjoying life, as I know it....immensely. Besides random work emails, letting me know I did something wrong (received on the weekends, of course) everything is going swimmingly.

This past weekend, especially, was filled with love and fun times.

The handsome Groom, the Rev, and Mrs. Elie Swanberg-Kerns

On Saturday, my good friend Elie Swanberg (now Elie Swanberg-Kerns) got married! This is kind of a big deal as she never saw herself as the marrying kind and her now husband had given up on relationships just a couple months prior to meeting Elie. Their love is amazing and I am so glad to have witnessed their special day. My hubby performed their ceremony and it fills my heart with pride to watch Theo bring two individuals together to "Walk the Line" in this weird thing we call marriage. Of course, the celebration was not complete until 3 cop cars were unnecessarily called.

On Sunday, my pregnant BFF, Leanna, had her Baby Shower for Mr. Oliver Patrick (or Baby-O, as I call him). Her dear friend and my twitter buddy, Amanda, hosted the perfect day (it RAINED!) at her lovely home overlooking San Marcos. The theme was Cute as a Button and around 25 girls, and one cute lil'boy named Kingston, came together to celebrate. We played games, ate yummy chilli and soup (my favs), and enjoyed catching up with a great circle of friends Leanna has collected over the years in San Diego. I was honored to play photographer and even ran a "photo-booth" set up by her talented hubby.

Sometimes I reminiscence how much easier life was when we were teenagers (Leanna, Elie, and I), but I am so thankful to have both in my life still to share in the wonderfulness of adulthood and new chapters in life. So whether we are walking the line between being bad or good @ work, between singlehood and marriage, or between childless and parenthood, we all at some point Walk the Line.

more pics soon!

thankful thursday...

2011-11-03T17:30:00.000-07:00

I have been keeping a handwritten journal since September, so far I have written in my long term and short term goals, along with a lot of other goodies, including what I am thankful for weekly! Here are 2 weeks worth:

From Thursday, October 20th:

Volunteers who are now Best Friends
Best Friends who are awesome volunteers
People who understand
French Press Coffee
Coworkers (current and past) who are friends for life
Roasted Veggies
2 hour long games of Badmittion
BBQ in October (<3 CA)
Domestic Craft Brews
Fresh & Easy
Pumpkins; especially mini white, green, and orange ones

Today, November 3rd:

Blog buddies who let me borrow a dress ;)
My hairstylist who I have seen on and off since high school and still charges a fair rate (actually too low, I think) and cuts/styles my hair so nicely
Finding inspiration in my job over and over again
Movie dates with my mom
Groupon
Pounds of Anniversary Blend gratis!
Meeting new friends
Red nail polish
Wedding prep
Baby Shower prep
Medication that works

Mad Men Lessons

2011-10-30T14:24:00.000-07:00

Recently, we watched all of the Mad Men episodes via Netflix Instant (I know, we are late and all, but we don't have "normal" TV and we never really saw the big deal with Mad Men). But, we enjoyed the series and are looking forward to new episodes, which we will wait for on Netflix.

7 things I learned from Mad Men: (all photos via google image search)

1. It's okay to be smart and to make mistakes...

2. It is okay to have blond moments and to get rid of your annoyances...

3. Flaunt your curves, always...

4. There's always a douche bag in the group.....

5. The less you do, the more important you are...

6. Men are just as complex as women (I already knew this, but it was nice to see on TV)...

7. When in doubt rock an awesome dress and own it, even if it is borrowed;)...

Elie's getting married!

2011-10-28T18:48:00.000-07:00

I recently hosted a "Bridal Shindig" for a good friend (old housemate) and it was a blast!! It started off like a "normal" Bridal Shower and ended with a Drag Show!! My hubby is performing the ceremony next weekend and we CANNOT wait for the wedding...it will be incredible.

Party Prizes

New York Kitty and I

The pre-Party!

"Ball & Chain" Cupcakes

Liberty gets in on the action!

The gang at the "after" party

More photos here: Bridal Shindig!

Julia Child is my homegirl.

2011-10-28T10:39:00.000-07:00

Source: flickr.com via Kelly on Pinterest

Shame - Part I

2011-10-27T20:00:00.000-07:00

Disclaimer-I do not condone nor recommend the following; this is my story and I hope you do not have to experience this one day or if you have, I understand.

I don't like to think I have shame due to my arthritis, but I do. For me this is crazy to admit...I am an arthritis advocate, I have made my voice heard and assisted in positive legislative change both Federally and Statewide. BUT, if someone looks at me wrong/asks me why I limp, I feel some shame.

In the last year something else has brought on a lot of shame for me as well. I have only shared this with a handful of people, but something in me is urging me to share here, to be open about my struggles on top of arthritis/brought on by my arthritis.

In November 2010, my husband and I filed for bankruptcy.

Let me back up. We paid our bills on time. I have a degree in Public Administration with a Finance concentration. I used to play with checks for fun and balance my mom's checkbook when I was little. I thought I was too smart to file for bankruptcy, but life got out of control; I had new (expensive) hips and my husband's state disability ran out. We were between a rock and a hard place.

The only time we did not pay our bills was the 2-4 months we were going through the "shameful" process. We hired a lawyer (someone I googled), paid in cash, and crossed our fingers it would be okay. It was, almost....

We are not free and clear now, but we are in a much better position. We kept our financed car, as we only have one working car. Due to improper filing on our lawyer's end, this past spring our beloved Ed (Ford Edge) was repossessed! After 4am phone calls, finding the proper process myself, and admitting to my mom what was going on (I needed a ride to the bus for work!), we got the proper paperwork filed within 24 hours and after paying the repo man $400, we got our car back. Talk about embarrassment; our neighbors were peeking out their windows when our car was taken at 2:30 am by the loudest tow truck ever!

I had so much shame, I originally told no one what was happening, but eventually (like I mentioned before), I had to tell my mom, the woman who raised me better, and had to admit to myself that I had failed.

to be continued....

giving thanks, a little early

2011-10-06T22:59:00.000-07:00

Just a little list of what I amthankful for this week:

Family~ especially my husband, mom, and pups
Cozyhome
Myjob and fun coworkers
NetflixInstant ~ mainly Breaking Bad and MadMen right now
Friends.
Darkbrown hair dye
Thefeeling after a good workout
Readingmy favorite blogs
Hotsoy latte on a cold day
Thesprinkles before a good rain
Colorfultights and the proper weather to wear them in
Thefast bus and nice bus driver that get me to work most days
Blueberrieswith greek yogurt or with oatmeal or all by themselves
Newsthat Arrested Development is coming back!

Happy Invisible Illness Week!

2011-09-18T09:52:00.000-07:00

Copied this meme from lipstick, perfume and too many pills; it has been making the rounds for Invisible Illness Week.

1. The illness I live with is: juvenile rheumatoid arthritis (JRA), now known as juvenile idiopathic arthritis (JIA)

2. I was diagnosed with it in the year: 1980

3. But I had symptoms since: 1980

4. The biggest adjustment I’ve had to make is: I'm a lifer! Do not know life without JRA.

5. Most people assume: that only old people get arthritis.(Yup)

6. The hardest part about mornings are: getting up before I am ready to and (lately) my stiff ankles

7. My favorite medical TV show is: Scrubs or House (wait, does Dexter kind of count?!)

8. A gadget I couldn’t live without is: my husband;)

9. The hardest part about nights are: when I'm exhausted and cannot enjoy watching tv with my hubby

10. Meds: 3-11 pills per day and monthly biologic infusion, pain meds as needed.

11. Regarding alternative treatments: I believe alternative treatments work for some and are worth a try, as long as you ask your Rheumy first!

12. If I had to choose between an invisible illness or visible I would choose: while arthritis is pretty much invisible to most, I can "see" arthritis in me and others. I would not trade arthritis for another disease.

13. Regarding working and career: I have the best job/career ever. Even at my worst and I am so happy for my workplace and coworkers.

14. People would be surprised to know: that they are more children/teens with Juvenile Arthritis than Juvenile Diabetes.

15. The hardest thing to accept about my new reality has been: this is my reality.

16. Something I never thought I could do with my illness that I did was: I am still waiting for this incredible experience of accomplishing something so amazing with my chronic disease.

edit, I helped my hubby replace an engine in our 1951 Ford Custom.

17. The commercials about my illness: I don’t have cable, so I don’t see them. (same here)

18. Something I really miss doing since I was diagnosed is: when I was younger I felt left out when friends/family were participating in sports or playing "rough".

19. It was really hard to have to give up: getting tattoos; between the cost of a chronic disease and risk of infection, my last tattoo was at 21, over 10 years ago. lately I have really wanted to add some new art to my skin.

20. A new hobby I have taken up since my diagnosis is: I love swimming.

21. If I could have one day of feeling normal again I would: if I could have just one day to feel "normal" (for the 1st time) I would run on the beach and swim in the waves.

22. My illness has taught me: that even bad things can have upsides. (I totally agree!)

23. Want to know a secret? One thing people say that gets under my skin is: this is tough as it takes a lot for something to get under my skin. lately I have noticed online some bashing in arthritis support networks, especially around how individuals deal with their arthritis/find relief. every body and everybody are so different, especially when it comes to arthritis or any rheumatic condition. we all find what works for us eventually (or have to re-find it several times, arthritis is a tricky bastard!) and usually share with others. that is what a support network is for, sharing, support and encouragement. it is especially frustrating when the leaders of these networks ignore the bashing or, even worse partake or start it!

24. But I love it when people: give each other support, love, and hope (jeez I sound like a hippy!)

25. My favorite motto, scripture, quote that gets me through tough times is: life is tough, I am tougher. (read randomly on a blog somewhere)

26. When someone is diagnosed I’d like to tell them: they are not alone. also, I like to share that learning to live with arthritis is a process (this process can go quick or take several years, some go through it multiple times). It is similar to the 5 stages of grief. a person newly diagnosed is losing something very valuable, life as they know it, and learning to start all over....new beginnings.

27. Something that has surprised me about living with an illness is:that I am pretty darn good at it!

28. The nicest thing someone did for me when I wasn’t feeling well was: there are a few, but one that just popped in my head and I don't think I ever share this with many (so, of course, let's share with the whole blog world!): during a 8th grade trip on the east coast, I was wheelchair bound mid-way through our 10-day adventure; my class was in line for the Statue of Liberty. a street performer sang "You're so Beautiful" to me; I almost died, I am sure I was beet red with embarrassment, but looking back I really enjoyed that moment and could not feel sorry for myself. Thank you Street Performer for making a 14 year old girl in a wheelchair feel special!

29. I’m involved with Invisible Illness Week because: our diseases are only as invisible as we are. (so true!)

30. The fact that you read this list makes me feel: happy and hopeful

Happy

2011-08-29T15:00:00.000-07:00

This was my start to my July update, as all I seem to do is monthly (or fewer) blog posts now. I got as far as the title, Happy. Because that is what I am and what I want to be. For many months I was not happy and life seemed hard. Life is still hard, don't get me wrong, but there is definitely several different ways to look at life and what is going on around you.

Happy things:

Sticking our feet into the ocean after dinner and drinks....fun, except for the huge piece of tar that got stuck to my foot!

A unexpected Tuesday night dinner and drinks with a far away friend and our little group of friends. Daniela, who teaches in Saudi Arabia, was in town for one for her closest friend's wedding. We had worked together in college (briefly attended the same community college) and is one of the most amazing people I know. I love her soul and we always have the best conversations.

Working out with friends!
Richard Simmons, new friend Lisa, Stephanie, and I

After proclaiming to another friend I would NEVER workout with Richard Simmons, I did for her birthday and it was amazing! Never say never. By the way, Stephanie is another awesome friend of mine. I admire her so and glad to call her a close friend!

Enjoying the view, beautiful meadow from a bridge @ camp

Baby Animals always make me happy!!
One of the baby goats at camp I wanted to take home, so cute!

Camp Esperanza, Teen Leadership (a camp just for older teens with arthritis and related diseases) just ended this past Thursday. This year was my 6th summer as the Director and it is an experience I have decided cannot be put into words. It is that amazing! This year there were many fresh faces, both campers and volunteers. I was worried as having so many new people at camp can be challenging, as it turns out it was anything but! The newbies did a beyond wonderful job and I am so grateful for many joining last minute to help out!

Wedding ceremony overlooking the Pacific Ocean

Celebrating, Hubby and I, pre-reception "shots"

This past Saturday two longtime friends finally got married!! My hubby was asked to perform the ceremony and in doing so, got to wear a kilt and developed a great bond with my good friend's now husband and his groomsmen. The ceremony and reception were so, so fun, it was very much a celebration of love!

Last, but definitely not least, my hubby and I celebrated 10 YEARS of marriage!! While we are on a pretty tight budget and I am usually away for camp, we decided to forgo a big celebration, but plan to host a big party in 2014 (13 years), because we can! I managed to make it home just in time to celebrate on our actual anniversary this year! Hubby surprised me with Yellow Roses (true love), a tin anchor and star to decorate our house (tin is the traditional 10 year anniversary gift), and some cool, red cat-eye sunglasses from one of our favorite stores My Baby Joe. We also purchased a lamp that we just spotted in the new Ikea Catalog; we love lamps and this one was 50% off in the as-is section.

As you can see I am pretty happy right now.....but let me tell you I was not a happy camper 2-3 months ago. When I wrote the title for this post I had only been out to dinner with my far away friend; since, life has been good. I truly believe what you put out there is what you will get. I realize I will have more "dark" times and more happy times, that's life. So I am going to enjoy this time to its fullest and stretch it out as long as possible!

Cheers,

Jennifer

JUNE!

2011-06-20T20:13:00.000-07:00

Wow, it's ~~the middle~~ almost the end of June, where is the time going?!.....so much to do. While I love my summers now......I kind of miss the mellowness of an actual summer vacation. The warm late nights, homemade lemonade, shoes with no socks, swimming all day, and leaving town for weeks at a time.

Hubby and I did begin our summer with a Mini ROAD TRIP! The weekend before last, we spent several days in way Northern CA with family to celebrate 3 graduations!! It was bliss and so nice to get away. I love the Ziegler's North (we are Ziegler's South) and always get a little depressed on the 11-hour drive home and the several days following.

Now a week later and back into the grove. I finally returned to the gym (YAY!). Last night included swimming for the first time since December. I am usually a pretty strong swimmer (or I like to think so), but last night my body cracked and creaked like never before; it felt good. My shoulders especially were affected by this last flare and needed that swim. Barely got in 10 laps, but at least that's better than none. Workout was supplemented with pre-20 minutes on the elliptical, water exercises, and lots of stretching!

Lately

2011-05-27T21:29:00.000-07:00

May happenings.


Fancy Coffee with a good friend.

Liberty not feeling well. :(

An interesting handicap symbol, see background.That handicap sign is definitely handicapable.

Medical Bills, never ending.

A bowl full of cherries. My favorite fruit after blueberries.

May, almost June is definitely looking brighter for me! My arthritis flare seems to have FINALLY subsided; just waiting for my full range of motion to return (I tried to bathe a pup the other day and could not kneel and found this out too late, ouch!). Anyway, feeling great for the most part and looking forward to......well, everything.

Today, I had an unexpected free day from work, so I worked in the morning from home (what's a girl to do when there's work to be done) and then hubby and I hit the movies; we had a discounted tickets from Groupon about to expire. We decided on the new Pirates movie in 3D and it was meh; at least we did not pay full price. And even though I recently cut way back on sugar I could not resist a Cherry Coke.

Tonight, we are relaxing as usual and getting ready for a fun 3-day weekend; hoping to get a lot done around the house. One highlight, on Sunday hubby is dressing up as Wolverine for a superhero themed birthday party for twins turning 3. Instead of hiring expensive "actors", our friends recruited family and friends to dress up as miscellaneous superheros for the party and I volunteered Theo (he has the best chops for Wolverine!).
He is trying on the costume as I type this, love it!

Lastly, we are looking very forward an upcoming road trip to Arcata, CA to see our nieces and nephew graduate, 2 from high school and 1 from Jr. high. This post from one of my favorite blogs has gotten me even more excited as we have not been up north since December 2009. We usually head up there at least once, if not, twice a year, but last year with my surgery we did not have a lot of extra time to travel.

YAY for feeling good!

When the going gets tough...

2011-05-18T21:49:00.000-07:00

I am going on month 3 of an arthritis flare-up. It has been 5 weeks since I started a new biologic medication. I am definitely feeling better; as in, I have had a few good days mixed in with the rest, so I know it is just a matter of time now. Unfortunately, this chronic pain, inflammation, and fatigue have been ruling my life lately. Any energy I do have goes into work and family. My workouts, social life (what little I had), and "hobbies" have been severely left on the back burner. And now, I am emotionally not feeling well if you know what I mean.

In last couple weeks, since I have had a few decent days, I have started formalizing my plan to get back to normal, or at least closer to my normal. My normal includes: exercising, blogging, completing goals, being outside, going the extra mile at work, and just enjoying the small things.

**I wrote the above a few days ago and have not returned to finish it until tonight. I have had two very good days in a row! I don't want to jinx myself, but I am feeling much better and even went on a nice, long walk with my mom and Spyke this evening.

Actemra time!!

2011-04-13T19:54:00.000-07:00

So today marks a new adventure in my arthritis world. I started my 5th biologic medication, Actemra, and my fingers are crossed this will work as well on my arthritis as my old favorite Remicade, which I was/am highly allergic to, but really put my arthritis in check.

It was strangely comforting to be back in the Infusion Room at my doctor's office. This is a place I have received so much relief from arthritis, something that I have taken granted of in a past life. I am now so aware of how necessary a biologic drug is in my life. I wish I could have maintained without one due to cost, time, and the thought of longtime effects that may or may or may not be worrisome.

While in the Infusion Room, I chatted with another patient I met years ago during a Remicade appointment. We had a great time catching up and discussing upcoming opportunities for her and her family to get involved and find additional support in the arthritis community. We also had some fun researching the infamous gin-soaked raisin arthritis "cure". I was surprised neither her nor my nurse have heard of this interesting remedy, so my nurse googled it and we decided at the next party instead of Jello Shots we will serve 9 gin-soaked raisins!

I am home now and waiting for the Actemra to kick in*. (*I realize it might take a little longer than 2 hours to work). Looking forward to a pain level under 5 and no more "pain nightmares".

March Update!

2011-03-31T18:58:00.000-07:00

Just had my actual 1 year post-op appointment today; everything hip-wise looks GREAT!! Unfortunately, the rest of my body did not get the "lets feel great memo". Arthritis is rearing its ugly head right now and is not letting up, even after 2 cortisone injections. So, I am going to start a new biologic, Actemra. My insurance has already approved the infusion, just waiting to hear back from Genetech about patient assistance, since I cannot afford the co-payment (biologics fall into a special co-pay category, so their co-payment can be anywhere from $100-$500 or more $$, it's nuts). According to my Rheumy, Genetech has an great patient assistance program, so I am looking forward to seeing how much they can help out!

Newest X-Ray, right hip

March Happenings:

Attended the Arthritis Advocacy Summit in Washington DC at the beginning of March. Able to hang out with some very old and dear arthritis friends while in DC. It was so amazing to talk and reminiscence all while promoting arthritis awareness and gaining support for arthritis research from our Congress members.

One of my favorite quotes picked up while at the Summit,

"Ten people who speak, make more noise than ten thousand who are silent" -Napoleon Bonaparte

Trying to look cute through the pain.

Flew Virgin American home from DC.....highly recommend. Usually, I am true to Jet Blue, but Virgin has bright pink headphones for movie/tv viewing.

Missed a bunch of fun work and friend gatherings due to the monster arthritis flare that is still lingering. Learning when to say I can't is so very important during these times; I feel bad, but you got to do what you have to sometimes.

Went on a DISNEY CRUISE last week with my mom, sister, brother-in-law, his dad, nieces, and nephew. Thought my flare was over since I received two cortisone injections 5 days before the cruise, but my flare came back while on vacation. Luckily I was able to relax lots and not have to worry about anything!


On the Disney Wonder near the Norwegian Star (the ship I was on in January....yes, I went on 2 cruises in 3 months, so?!), Puerto Vallarta, Mexico

Watched TRON (loved the Boston Terrier cameo), Gnomeo & Juliet, and much more while on the Cruise.....love Cruises with Movie Theaters!

This week was back to work, had to get my flu shot all late for a camp requirement today (totally forgot to get it in the fall!). Even though I feel like poo and was just on vacation, I love being back at work. I swear I have the best co-workers and Arthritis Family Weekend Camp is in 3 weekends!!! Plus, next weekend I get to attend an Arthritis Introspective Conference in Tempe, AZ. Excited to meet so many arthritis friends I have only "met" over Facebook!

Nap time!

xo, Jenn

Happenings

2011-02-24T22:07:00.000-08:00

Um, so I would could write about how busy I am (I always seem to be lately), blah, blah, blah. But I won't, because I know many people are busy and being busy doesn't necessarily make an interesting blog post. Am I really going to look back on this time and want to read about busyness? No, probably not.

So instead, here are some photos from recent events:

Bro-in-law in town with his 3 amazing kiddos this week.
I snuck into this pic above during our traditional Sunday walk on the cliffs near the beach.

We enjoyed a couple trips to my new favorite treat place, Yogurtland!
left to right-Thalia, Elena, Josh and brother-in-law, Erik peeking in back

Right now, we (actually, just the boys) are watching a foreign movie called Troll Hunter....sounds interesting. After a too fast trip while scouting top-notch colleges all-over Southern California (I was busy @ work), eating yummy, big family dinners, and surviving with one bathroom for 6 Zieglers, Zieglers North (we are Zieglers South) head back tomorrow morning. They take off for the long drive back to Humboldt and we are already not looking forward to that-boo. But we will be making the trek up there very soon to witness the twins (Josh and Thalia) graduate from high school and Elena graduate from middle school.....can't wait to hang out in their neck of the woods; it is so pretty in the North Coast.

Past Happenings

Last week, hubby and I celebrated our day of love on February 15th-the day we met 14 years ago in a dirty, yet fantastic, little club in Santa Monica, the Alligator Lounge. No photos to document a way overdue, yummy Italian dinner in Marina del Rey, but it was amazing (trust me future self!). We followed our romantic dinner with a MickeyD's vanilla soft serve and a drive by of where the Alligator Lounge once resided. We were home by 9:30 PM!

Near Future Happenings

Tomorrow, as we say good bye to family, I will be packing my own suitcase to head to Washington DC for the 2011 Arthritis Advocacy Summit! First stop will be Richmond, Virginia to visit more "family", actually, more like my friend, Laurie Miller's parents, who I adopted, because they are so sweet. After a quick weekend visit there, we will arrive in DC on Monday, ready to advocate our little hearts out for arthritis.

Laurie and I at the 2007 Arthritis Advocacy Summit.

I plan to be tweeting live from the Summit, so follow me here for continuous updates.

xo,

Jenn

PS-My arthritis seems to be doing pretty well, except my right knee keeps locking up and both feet/ankles have been experiencing spasms-not my normal flare routine at all. I hope my legs can pull it together while on the east coast, fingers gently-crossed.

One Year

2011-02-10T09:08:00.000-08:00

One year ago today, I was here.

It is amazing a year has past already and in that same note it feels like I have lived several years in the last one. Last night I kept telling myself I need to compose my "10 year" blog post about my hips, quickly reminding myself it has only been ONE!

Some brief highlights from the year:

Wearing lounge wear all day and having a pimped-out cane.

During recovery, experiencing a horrendous flare-up and bouncing back like wonder woman when it subsided.

Chopping my hair off (in which, I am now desperately growing out).

Playing dress-up with Kyla Roma.

Iyengar yoga to keep me sane, during a more stressful time of the year.

My awesome friends/family (one in the same) who all who showed their love throughout the year:

My momma, with me every step of the way-lol=lots of love;).

Good friends taking me out for dinner before my surprise birthday party, sneaky, sneaky!! (Look at my long hair, totally miss it!!)

My bff volunteering at one of the Juvenile Arthritis camps I oversee.....that made my summer!

A little shaving cream is needed at every camp session.

My Co-Worker/Co-Camp Director/Partner-in-Crime-
she makes me smile like this all the time.

My core camp family <3.

Secret notes from campers also put a smile on my face.

My husband and cute pups who complete me in so many ways; I'm so grateful for my little family.

2010 was an amazing, interesting, and, probably, the most rememberable year yet. Currently, I am still doing damage control on overdoing life and trying to do everything. I think by feeling so great after recovery I "ran" full speed ahead and took little notice of the warning signs to rest and relax. That is why it was pretty quiet over here for awhile....my battery ran out back in October and I am still trying to recharge it! I am feeling a lot better overall, but my body & mind are still hesitant.

Thank you to everyone reading this, for your support and encouragement. I am so happy to have shared this experience with those who understand and those who are curious.

Love,

Jenn Z.

It's been awhile......

2011-01-21T09:24:00.000-08:00

and I miss reading my own blog.

What's new:

New Year-Happy 2011!
Just got back from an amazing, much needed vacation with my love. Maybe I will turn my hand-written vacation journal into a blog post or two. Especially, because, I know how much I will enjoy reading it 6 months, one year, and 20 plus years from now.
It's Friday and even though I have only been back at work for 3 days after over 3 weeks off, I am looking forward to a movie watching/game playing/pup walking/breakfast-for-dinner kind of weekend.

That's all I got for now.

2010-10-27T09:39:00.000-07:00

"this too shall pass"
-(I Corinthians 10:12 and an OK Go song)

I recently read this little quote in an article in Vogue talking about back pain. A physical therapist mentioned she tells this to patients when they feel they have hit a wall with their pain. Back pain is the only pain I don't really have (knocks on wood), except back pain thrives at the Ziegler House. My husband, the love of my life, suffers 24 hours a day and night with back pain. I don't really write about my hubby's ailments as that is a whole blog in itself. But briefly, he is the recipient of 3 chronic conditions: 2 Herniated Discs, Spinal Stenosis, and Fibromyalgia. All diagnosed within the last 3.5 years.

Lately, life has been all consuming (on all levels) and I have stopped updating this little blog for sometime and will continue on break for even more time. My pain thankfully is in control as of now and it looks like it is (has been) my hubby's turn to carry the "pain baton". In some ways, I wish I was in pain instead of him...I think this is how one feels when the person they love is in pain. This is a shout out to my husband, just remember, "this too shall pass".

Love you Gummi Bear,

Your Wifey

PS-My hips are not recalled, phew!!

Update: Life

2010-10-17T21:22:00.000-07:00

So I have been pretty quiet over here on Project Jennifer. I wish I could say not much is happening, but that would be an understatement. Life in general is busy and usually, I can handle it, except, usually, this is my down time of the year. After my summers and camp, the fall brings planning and budgeting (work) and relaxing and snuggling (home). This year, I committed to helping on an 8-day Bike Tour (which I thoroughly enjoyed, but came home exhausted) and right when I returned home my husband and I were back and forth between home and his parent's house/their local hospital (almost 1.5 hours away) for almost a week. Then, I had LOTS of work to catch up on and all I wanted to do was lay around in my pajamas and watch movies, which I was able to do this weekend, finally. This coming week through the beginning of November I am still uber busy.

What I am looking forward to:

-Tomorrow, I have a follow-up appointment with my hero aka surgeon, Dr. Dorr. I will finally have the chance to ask if my new parts were part of a Hip Replacement Recall!

-Work weekend in Las Vegas! Working an Arthritis Walk and hanging out with my niece and one of my favorite campers while there.

-Work weekend in Long Beach! Hosting a conference for young adults with arthritis and hanging with some of the most amazing people I know and work with.

-Wrapping up the work weekends with a somewhat non-work weekend in Palm Springs, attending an Arthritis Walk as a participant, not staff, and hanging with my Bestie and her hubby!

That's all I have for now! Squeezing in one more movie this Sunday night and I am enjoying homemade pumpkin-chocolate cookies=so good=had to do something to get myself into the fall spirit.

xo, Jenn

Arthritis Foundation: CA Coast Classic Bike Tour

2010-09-23T18:10:00.000-07:00

8 DAYS

525 miles

250 Bike Riders

~10,000 PB&J's (I will make!)

Hopefully, I will ride this next year. This year I will tackle those curves and hills in my Crossover. Will be hangin with my favorite rider, Laurie. We are on the road to San Francisco as you read this.

Here are some of my photos from last year.

Laurie and me!

I made Laurie turn around and ride back for this photo! She's awesome!

Our CCC pumpkin!

Summer Weekends

2010-09-18T09:06:00.000-07:00

So this weekend our plans were thwarted. We planned to head to our in-laws and to San Diego to hang my best friend and her hubby and see Southern Culture on the Skids. BUT, my hubby just started back at the University this past week and is inundated with papers, research questions, and reading; more so than he had imagined. So we had to cancel our getaway plans and stay home to study (him) and blog/clean/work/haircut (me) and work on our DIY projects (us).

Overall, I love summer weekends. It is a mini-summer break to enjoy the Southern CA sun, BBQ, and eat lots of ice cream. Last summer we swam many weekends at a friend's house, but this summer it never actually got hot enough-long enough to enjoy the non-heated pool; we did manage to play in the pool one weekend!

Some of my favorite weekends this summer (besides the ones I was at Camp Esperanza) were ones spent with the in-laws in the High-Desert and 4th of July Weekend when my niece Madison spent the night.

We go to my hubby's parent house at least once a month and Theo would spend most of his time there when I was busy working at Camp too. Weekends there include lots of relaxation, puppytime (there have a Boston too!), yummy meals, and the best ice cream ever-Tillamook! The city my in-laws live in also has summer movies in the park-which is one block from their house, Sonic Drive-In, and Winco (where we buy copious amounts of Tillamook yogurt and ice cream!). See photos above for a snap shot of a typical in-law weekend.

I blogged about my 4th of July already, but I did not include the amazing time I spent with my niece Madison that weekend. This year it was a goal to have each of my nieces(2) and nephew hang out with us more-so we are having a slumber party individually with the 3 of them throughout the year. First was Madison, an athletic, sassy, circus girl. We started the day off with lunch at the Northwoods Lodge with my mom. Then ran errands to pick up a movie and dinner stuff-Theo made hamburger patties and baked potatoes for dinner. We went on a sunset walk with the pups, roasted s'mores in the backyard, painted our nails, and watched Coraline. In the morning we went on another pup walk near the Donald Trump golf Course (our favorite walking destination) and headed to grandma's house for pancakes! She spent the day with grandma and the next they both came over for 4th of July BBQ and fireworks!! It was the best weekend all summer!

my mom enjoying lunch with her #2 daughter and #2 granddaughter

backyard s'mores-YUM!

Saturday morning walk near the Donald Trump Golf Course

Now I have to get busy and make this Saturday a productive one!

Jenn

Zieglers in the Kitchen

2010-09-16T16:25:00.000-07:00

We made a Family Cookbook recently with help from Heritage Makers. It was a lot of FUN, but we procrastinated so much...it was not even funny (kind of like this blog post I originally started on July 14th!). Anyway, we recently received the final product and love, love it.

AND, I want to share a passed-down Favorite "Fitzpatrick-Roe" Family Recipe with you!!

Appropriately named "Libby's Waffles"; my sweet pup, Liberty, thinks these yummy, light and sometimes crispy breakfast treats are named after her! Also, it seems these waffles must be made with the below nesting, pyrex bowls passed down from my momma; it just doesn't seem right prepped in anything else. I have many a fond memories beating the egg whites in the smallest blue bowl on Saturday mornings during cartoons or Sunday before church, helping mom make breakfast. Recipe:

Libby's Waffles

1.5 cups flour
3 tsp baking powder
.5 tsp salt
2 tbsp sugar
2 cups milk (sometimes we use soy)
2 eggs separated
.25 cups butter melted

Step 1: Turn on Waffle Iron (We swear by a non-Belgian one) (We also have one that makes Mickey Mouse shaped waffles, but they are not as good as the original)

Step 2: In large bowl mix all dry ingredients.

Step 3: Slowly stir in milk, beaten egg yolks, then melted butter.

Step 4: Fold in beaten stiff egg whites.

Step 5: Cook in waffle iron as directed. Serve with soft BUTTER and Pure Maple Syrup. Add blueberries on top for an extra special treat!

beatin' the egg whites in the little blue bowl!

dry ingredients, egg whites, melted butter, beaten egg yolks, and milk

slowly mixed-in milk and other liquid goodies

final product!

So good, enjoy!

Jenn

6 months, 6 dresses! Dress # 4

2010-09-15T20:22:00.000-07:00

Here is my August dress in September! At this point I am just skipping August, because my "September" dress won't be ready until October! I brought this little blue number from Plasticland (love that online shop!); I think I purchased at the same time as the red-pink halter dress in July's post. It's by Tulle, it's strapless, and has the most wonderful seersucker-like fabric. I paired it with sweaters in both of these photos and a tan belt from Target in the above shots.

This year, this dress has been my favorite. It's almost like a pair of jeans, it goes with so much-it can be dressed down or up and worn during any season (in Southern CA)! I actually wore this dress on my birthday and the night before surgery when we went "out on the town" and saw Nouvelle Vogue! Also, I just realized every time I have stepped out in this dress I have worn different shoes, anywhere from flats to knee-high boots to Mary-Jane's, sometimes with tights too. Fun!

PS-My hair is getting longer and I'm sporting a mullet!

Lots of love,

Jenn

Last Tuesday....

2010-09-07T21:04:00.000-07:00

....was way different than this Tuesday!! Sometimes, I wish I could press pause and rewind to enjoy days like last Tuesday whenever I "needed" to, especially on crazy-busy drive all-over LA days!

Last Tuesday, hubby and I finally "cashed" in our complimentary passes to Glen Ivy Hot Springs AND we were offered a private cabana for FREE as well; IT.WAS.AMAZING. We cannot thank Glen Ivy and their staff enough, especially Jennifer in PR/Communications-she was the one who originally contacted me, sent us the free passes, and then, the day before we headed out secured the Bamboo Cabana, since we were also celebrating our 9th Anniversary!

Since words cannot really explain our day, I will share photos. Unfortunately I did not capture Club Mud or The Grotto, but these shots give you all a glimpse at our relaxing, indulgent day.

We arrive at the Bamboo Cabana; hubby needs to Tweet.

View from cabana!

Lots of photos, so I made collages:

We enjoyed lots of fruit, reading, and lounging.

We had a salt-water spa to ourselves and more lounging.

Almost perfect summer.

2010-09-05T13:27:00.001-07:00

Wow, it's hard to get back into the swing of things after such an amazing and busy summer. Life over at the Ziegler's is starting to calm a little, except hubby starts school this week and our house is a bit messy and out of order from the many DIY projects still happening and the "after-camp" extra stuff everywhere. I want to clean and organize so bad but we have a trip to Lowe's (final supplies for DIY projects) now and I have my last yoga session (for the study) this evening.

Here is my list (sneak peek) for upcoming blogs:

-Camp Esperanza (aka the best job ever)
-9th Anniversary!
-DIY projects (aka my husband can do anything....almost!)
-6 months, 6 dresses-August (a little late), maybe Sept too;)
-Slumber parties and backyard s'mores
-Favorite recipes and peek at a little cookbook we made.
-Silly blog on my favorite foods and another on jeans-just for fun!
-Oh yeah, and thoughts on a hip replacement recall

Good times. I miss blogging, but have thoroughly enjoyed keeping up with everyone else via my Reader on my Droid; a little late night reading and relaxing after my long, summer days.

My coworker, Mireya, and I at Camp Esperanza: Teen Leadership 2010

Jenn Z.

Happy 6 months to my NEW HIPS!

2010-08-11T19:35:00.000-07:00

Today, is the 6 month anniversary of my total hip replacements. Woot!

Brief recap of my "hip" story:

1980-I was born and diagnosed with Juvenile Rheumatoid Arthritis at nine months old, had symptoms of arthritis since birth. Also, born with a mild form of Hip Dysplasia; both probably/possibly inherited.

1999-Hips start hurting a lot. First left, then right. For 11 years mainly my right hip hurts but both aren't right. I quickly loose range of motion and within a year or two I cannot put on my own shoes and socks.

2001-Rheumatologist (my Rheumy) says I am a candidate for a new hip or two. But also recommends waiting as long as possible, since hip replacements don't last forever, so the longer I waited, the less surgeries I could face.

2005-Take my first pain medication. Enjoy the mild "high" and the slight relief from constant, debilitating pain.

2006-Take my 2nd dose of pain meds almost an entire year later. Both times were during Camp. X-rays of hips taken again, more deterioration, same recommendation as 2001. Decide to continue to wait.

2008-Make a PRO/CON list for hip replacement surgery. Decide to wait. Need pain meds on a regular basis. Practice Iyengar Yoga for 6 weeks-amazed, the best form of exercise I have tried for RA.

2009-Extensive physical therapy to try to extend the life of my hips. More x-rays taken. Visit 4 Orthopaedic surgeons in the fall, all recommend surgery sooner than later. Decide I want to enjoy my 30's and try to live pain-free for a little while. Schedule surgery on December 23, 2009 for February 10th, 2010. Happy Christmas to me.

January 2010- Visit Doctors, my Surgeon, hospitals at least once a week with my husband at my side. Favorite memory: spending a rainy day in Downtown LA with my hubby in between x-rays and blood work, enjoying a steak burrito to build up my iron.

February 2010-Turn 30, cut my hair off, and go under the knife (and saw). Spend a painful, uncomfortable 6 days in hospital. Another couple weeks at home in full recovery mode. Many memorable moments: one early morning I woke up in so much pain, headed to the sofa where my two Boston Terriers cradled me on either side and basically "held" me until I fell asleep into a med-induced stupor.

March 2010-Head back to work with my pimped cane. Feeling good, swelling is almost gone, and scars healing up nicely. Mid-month my RA flares. It takes at least 5 minutes to go from a sitting to standing position and I have to wear my wedding rings on a necklace, because my fingers are swollen like little sausages.

April 2010-Major arthritis flare-every joint affected, except hips. Mid-month, rheumy decides to inject my knees with corticosteroids to help relieve inflammation in my joints. Injections work, by the end of the month I am flare-free.

May 2010-Head back to the gym. Continue with goals and enjoying my new life, which includes crossing my legs again. Notice major improvement in my balance.

June 2010-Able to put on my own shoes and socks again! And tights!! Head to physical therapy for even more rehabilitation.

July 2010-Return to Iyengar Yoga! Instructor amazed at improvement and ability to hold different poses.

August 2010-More yoga. Busiest month at work. Thank goodness for my new, improved, almost pain-free body.

Cheers to my hips,

Jenn Z.

Iyengar Yoga

2010-07-31T21:19:00.001-07:00

So, I just started up with Iyengar yoga this past Wednesday. Only one session down and I already feel "better", more energy and something I cannot describe yet, but just better. I highly recommend this type of yoga as you can tell from the photos it is different from most. Check out more information here about Iyengar, himself, and his form of yoga. From what I have learned in class, Iyengar also lives/lived with a chronic condition and that is mainly why he developed this type of yoga, using lots of props and modifications to help individuals with limited movement do yoga and experience the many benefits of practicing it.

These photos are from the last time I practiced Iyengar Yoga, in 2008...I loved it, but could not continue due to location and $$. I am now part of an UCLA Yoga Research Study and get 6 weeks of free yoga, 2 times per week!!

Looking forward to my next class!

Salonpas: Pain Free and Proud

2010-07-25T09:42:00.000-07:00

Mr. Salonpas, me, and my good friend, Kristy

Hi Everyone,

Please vote for me! I am a semi-finalist in the Salonpas: Pain Free and Proud Contest! Click here to "like" my mini-story (which is your vote). And you, too, can enter for the next round of Pain Free and Proud!!

THANK YOU SO MUCH!!

xo,

Jenn Z.

6 months, 6 dresses: Dress #3

2010-07-23T15:36:00.001-07:00

see dresses 1 & 2

3 is my favorite number, so this should be a favorite dress, but it's not. I like it, but I do not love it. This dress is a bargain buy from Plasticland; I do love that online store. I bought this little halter number months ago (January, maybe), along with a few other super clearance items. As you can maybe tell, I am a bargain shopper. It's hard for me to pay full price for anything!

A little history: I usually go through waves of buying clothes. During 2009, I went on a clothes shopping hiatus and did not buy a new item for about 11 months!! WHAT?! Crazy, huh. Near the end, I become so paranoid about spending money that it became hard to buy even a pack of gum, because I thought, "Do I really need that pack of gum?"!! A purchase of my favorite Levi's jeans broke that hiatus in November of 2009. Since, I have purchased items here and there, but nothing crazy. If I did (and could) make a big purchase, it would be a pair of Tory Burch flats; I just love the way they look and I usually only wear flats at work; these are perfect for strutting (or limping) around Downtown LA.

Anyways, back to dress # 3. We headed to the Bowers Museum in Santa Ana to check out the "Secrets of the Silk Road"; hubby is a history geek, which I love. Also, he did oblige and snapped some shots of my dress outside the museum.

I still have a few posts in the works, along with one of highlights from Camp Esperanza (where I have been and where I am going, again, in less than 4 weeks). Hopefully, I will get a couple complete soon.

Also, a shout out to Amanda....thank you so much for the One Lovely Blog Award. You are so sweet!

Have a good week everyone,

Jenn Z.

I made my 1st Blog Button!

2010-07-14T21:21:00.000-07:00

All by myself!

Now back to packing for Camp!

Cheers,

Jenn

5 months and the 4th

2010-07-10T08:24:00.000-07:00

"Hey baby, it's the 4th of July"

Hi there,

So Friday, the 16th, I head to the first 6-day session of Camp Esperanza, a camp just for kids and teens who have juvenile arthritis and related diseases, like, Lupus, Ankylosing Spondylitis, Fibromyalgia, for example. FYI-arthritis is actually a blanket term for over 120 diseases!! After this session, I have less than 4 weeks until the Teen Leadership week of Camp Esperanza!! So, with that said, it might be a little quiet over here. I have many posts in the works, but not enough time to finish them. I plan to work on the posts a little here and a little there; we'll see if any are finished before Camp!

Last Wednesday was officially 5 months since hip surgery!! To me 5 months does not sound like that much time at all, but, like I have said before, looking back, it seems sooooo long ago! I am quickly forgetting about the pain of surgery, recovery, arthritis flare ups; which is good, but I don't want to totally forget what it was really like. When people ask about it I am honest....I felt like I was hit by a truck for about a week or two and having doubts I would recover as quickly as everyone promised. True, I feel amazing now, but there's break-through and phantom pain sometimes...just enough to remind me what I have been through, but not enough to truly knock me on my ass.

Brief update: I am still working out, walking, doing at-home Pilates, stretching, etc. This past week I started physical therapy and, of course, Paula (my PT) found the weak spots...she's so good. She was impressed with the strength I did have, but she totally found muscles that have been ignored. She dug into my hip flexors to loosen them up and gave me a short list of exercises to do. I did them on the reformer and floor mat there to practice and literally, they took 10-15 minutes to go through and I was BEAT! These moves zeroed in on those weak muscles and I totally felt it. But it is good she found them now, so I can catch them up to my other muscles and balance everything out for an even better all over workout!

I leave you with photos from the 4th of July, a favorite holiday here at the Ziegler's. We BBQed, dressed up, made mojitos, and enjoyed fireworks in the backyard, legal (ours) and neighbors' illegal ones!!

My momma and niece, Madison

The Artiga's: Jack, Damian, Georgina, Dorian and my hubby leaning on the garage <3

Disney-quality fireworks seen from our backyard!

Our normal little baby, legal fireworks

Below, sparkler FUN!

xo,

Jenn Z.

six months & six dresses: dress # 2

2010-06-30T18:04:00.000-07:00

See my first dress here.

I feel I am so late posting my 2nd dress for six months & six dresses, but I'm not; it's just the last day of June and I am one month behind the other totally gorgeous ladies playing along. So here is my 2nd dress, which I have actually had since April!! I first saw this cute number in the Woman's Day magazine, April edition, under "Bargain Finds" or something similar. It was advertised in the magazine from one website for $30. But when I went to said website they did not have this dress and I really wanted it. After I quick google search, I did find the same dress at Mod Cloth for $50 bucks-No Way Jose!! After one more search, I found the dress again at GOjane for less than $25 (and not a sale price)!!! It pays to shop around, even online.

My shots are below, taken on a June Gloomy Day in my backyard.

P.S. Libby did not participate this time around, but she does make an appearance. Maybe next month she will be less of a diva and show off one of her dresses she already has, instead of insisting on a new one;).

I technically have July's dress already too, let's see how long it takes to get some photos this time=).

Love,

Jenn Z.

Drum Roll Please.....

2010-06-25T16:00:00.000-07:00

I CAN PUT ON MY OWN SHOES AND SOCKS!!!!!!!!!!

What, what? Holla!! I can even tie my tennis shoes; I did not forget how=).

It first happened on Monday night before the gym....I waited to make sure I could repeat this small victory. Then last night before the gym, it happened again!

Next week, I head to physical therapy and I cannot wait to see my physical therapist's face when she goes to "loosen" my hips up. She used to work on my old hips last year when they were at their worst, like negative range of motion.

On a very personal level hubby is happy too;); that's all I'll say.

Cheers,

Jenn Z.

Georgia is my Friend

2010-06-24T18:35:00.001-07:00

Today I had my first Blog Date. "Blog Date" is meeting a blog friend in-person. Not sure if that is an actual term, but sounds good to me.

I found Georgia's blog, The State That I Am In, through Kyla Roma's, after Kyla linked us all via 6 Months, 6 Dresses. Georgia's posts are pure entertainment and she is an amazing writer; you should definitely check it out. After commenting on one of the archived posts about Camp and Hamburger Pie, Georgia emailed me, I emailed back, we chatted in gmail a bit, and the rest is history. Well, not really...we only just begun.

After discovering we work a block from each other in Downtown Los Angeles, we decided to meet for lunch one day. Since she is taking a little break from work starting tomorrow, we headed out today to one of my favorite restaurants Downtown, Adoro's Grill. To celebrate Georgia's break from her day job margarita's where in order!! Now, I don't usually drink during my lunch breaks, but it seemed fitting and thank goodness they weren't gigantic.

Lunch was great; we talked nonstop, well not nonstop, but a lot. So much so, I recommend not hitting up Mexican next time you might meet-up with someone so interesting and fun to talk with. We totally wasted our tortilla chips; I think I had maybe 5 chips! I did manage to finish my delicious tortilla soup though.

Thank you Georgia, for the best lunch break! Downtown will miss you!

xo,

Jenn

P.S. I am a bad blogger and took no photos; Georgia did, check out her tumblr here.

Happy Father's Day

2010-06-20T21:22:00.000-07:00

A quick post to thank all the father figures in my life-past and present, mainly present.

Below are two of my favorite photos of my dad and me. I was definitely a daddy's girl. Unfortunately, my dad passed away on my 8th Birthday-this is a blog post for another day! While sad he was gone and I was still so young, I could not have asked for a happier 8 years I did get to enjoy with my Dad.

1982-Me, Candy, and Daddy

1986-Brownies ceremony

Luckily, I had many wonderful father figures in my life. My maternal grandfather a.k.a Grandpa is THE BEST. I just spent most of the day at his house with my mom, aunt, and grandma. He did everything a father would do: went over homework, walked around the neighborhood as I rode my bike, took me on many of road trips, and supported me through life, anything from coming to my rescue when I locked the keys in my 1st car to helping cover expenses when I got married.

Grandpa and I-Grand Canyon, 1988

I also had two super uncles. They both had families of their own, but they would always try to include me on fun activities. Whether it was a family vacation, a spur of the moment trip for pizza, a father-daughter dance, or advice on college, finances, and life, I was covered.

Uncle Chuck and I cruise Hawaii, early 90's style

Uncle JB and hubby cruise Puget Sound, 2009
While this was the most convenient photo I found of JB, I would like to point our that he and my aunt Lynda included me on many family activities and I am forever grateful for everything they did for me while growing up. Especially the numerous trips to museums, vacations in Washington and Cabo, and the Chalkboard easel they bought me one Christmas; I loved that easel.

Last, but certainly not least, is my father-in-law, Ted. When my hubby and I started talking about marriage I was very excited to become part of the Ziegler Family; not only did I marry my husband, I married his whole family and couldn't be happier. I even asked my father-in-law to walk me down the aisle at our wedding.

Ted and I, 2001

Happy Father's Day!

xo,

Jenn

Genesis

2010-06-16T16:00:00.000-07:00

In the spring of 1979 I discovered I was pregnant. This was a well planned and new beginning for the Roe family. We had one daughter, Heather who had just started elementary school. I always wanted another child and I knew this would be my last child. The pregnancy was uneventful and a c-section was scheduled for February 1, 1980. I have a tilted uterus and my babies were floaters. On Thursday January 31, Bob, my hubby, and I were on are way to Torrance Memorial Hospital. We were still discussing baby names. Jenny's baby-daddy wanted Isadora (NO!!) and I was still picking boy’s names. Her middle name was easy. President Carter's daughter 's name was Amy and my aunt and I always heard her name mentioned in the news. Jenny arrived at 8:01 am. I had a couple of medical things like loss of blood and fatigue, but nothing major. When Jenny and I were set to go home she developed jaundice. We spent another day in the hospital with Jenny under the heat lamps and sunglasses on. Jenny's grandmother picked us up from the hospital and all the way home Jenny cried. She never liked sitting in a car seat.

Life at home started off and Jenny was not a happy baby. Her doctor thought she had gas/colic. Jenny had trouble sleeping and didn't like having her clothes changed. Jenny and I spent lots of nights watching movies and even saw Princess Di get married live on TV at 3 in the morning! When she did sleep, it was in my arms and I was sitting up. We noticed when one of her hands was touched she would automatically cry. The doctor thought she might have broken a small bone and x-rays would solve this problem. After many tests and more x-rays the doctors had no explanations. I did mention several members of my husband’s family had arthritis. But arthritis isn't proven to be hereditary. A few weeks later a simple blood test was taken and it was confirmed Jenny had arthritis. I was referred to Children Hospital Los Angeles and Jenny was put under Dr. Hansen’s care. It was confirmed that Jenny had Juvenile Rheumatoid Arthritis, with many joints involved. She was only 9 months old.

Things started to happen monthly, than weekly and sometimes daily with Jenny’s treatment. Her first prescribed medication was just baby aspirin. I can't remember the initial dose but in no time it was up to 17 tablets a day. I had to buy baby aspirin by the case! Like all medications Jenny took during her life, it worked! Just as life started to become "normal" Jenny’s sister came home from school with the chicken pox. Heather had less than 20 poxes and recovered very fast. But unfortunately, I had two other loved ones in the house that never had chicken pox, an adult and a toddler with an autoimmune disease. Jenny and her Dad came down with chicken pox by the millions. Life at the Roe house was filled with dozens of Caladryl bottles, hundreds of baking soda bathes and one arthritis flare-up.

Jenny's doctor was very proactive with JRA. I think he wrote the book on JRA. He kept me updated with possible new medicines and treatments to help Jenny. Gold shots back than were the big thing. Luckily, Jenny never started this medicine.

Physical therapy was a major part of treating kids with JRA. Jenny's Grandpa helped with taking Jenny to some of her appointments. Splits and serial casting helped any crippling side affects. Jenny was always up for whatever and adapted to making a game out of wearing her splits and taking her medication. One major problem Jenny had was stopping herself from falling. She wouldn't break her falls with her arms (they hurt!), so she fell on her face quite a bit.

As Jenny's disease progressed so did her medicines. Plaquenil and Methotrexate were her new meds in the late 80’s/early 90’s. We had to crush some of her meds and mix it with ice cream. Some of these pills were the size for adults, not some child with an undersized mouth. Children's Hospital was with us every step of the way. Educating and supporting us, even, financial support-by getting us connected with California Children Services (CCS), which covered most of what my health insurance did not cover.

Jenny never let the disease control her, she controlled her disease. Jenny always wanted to do everything other kids did, but she did it on her terms. One example is her school had a fundraiser and the activity was a jog-a-thon. Her doctor at this time advised her not to do this. It was too much on her joints. But Jenny being Jenny got her supporters and jogged/walked some laps. In high school, Jenny decided to stop taking her meds. By the time I found out, I immediately scheduled an appointment with her Rheumatologist. Her doctor said “great, we're back at square one”. Teenagers! Within a few months, Jenny was back on track. She always responded well to medications.

I tried not to treat Jenny different from her sister, Heather, but we do have a special connection.

I am very proud of you. You have a magnetic personality and loving, kind spirit.

Love you like a rock,

Momma Roe

4 months!!

2010-06-11T07:36:00.001-07:00

Quick blog, because we have to get on the road today to witness our oldest nephew graduate from High School!! Also, I changed my layout, you like? It is just an automatic one from blogger, but it looks so much better and the design in the background matches our curtains at home! Some day I will have a fancy custom one.

Okay, back to the post....Wednesday was the 4 month anniversary of my hip replacements! "Happy 4 month Birthday new hips." So much has changed in the last month, "four" sure it has been the best month so far. It seems I can walk forever; we are back to our usual routes when we go on the destination walks with the pups; at the end I feel great, not even tired and no pain. I am easily reaching my left foot, even tying my shoe on that side and getting closer to putting on my right sock. TMI-I actually clipped my own toe nails on my left side recently!! Wow, that is actually exciting to me. I now use the inner/outer thigh machines at the gym; before the new hips when I tried to use these weight machines at the gym, the pads went nowhere, cause I basically had zero range of motion. What else?.......I am stretching a lot more, because I can actually feel a pull in my muscles. Overall, my mood, energy, and stamina are greatly improved. I still have evenings where I am very fatigued, but those are even becoming less.

This week I also started tracking all my exercise via a Movement Tracker on the Arthritis Foundation's Let's Move Together website. It is fun to visually see a bar graph with how much movement I'm doing during the week and to see if I am meeting or surpassing my goal. It also will let you post your updates on Twitter or Facebook, so I sometimes share my progress with the group.

Other goals:

My little "lets do the dishes everyday" goal is going good. I probably will not update it here anymore since I think I have it down and it just seems silly sometimes.

Exercise & Shoes and socks-see above

6 months, 6 dresses~Stay tuned for my 2nd dress! Libby might also join in this month to show off one of her little doggy dresses. She has a ton of dresses, but could not wear any after she got fixed due to hormonal weight gain, poor baby girl. But she has been dieting this spring and lost her added lbs and can fit into most of her puppy wear. She is excited to join in, but really wants a new dress; we'll see.

I need to finish packing...no internet all weekend! But I am going to try to catch some of La Copa Mundial!!!. I was never into watching sports of any kind, but my friend at work compared the World Cup to the Quidditch World Cup in Harry Potter, so that caught my attention. I went online, checked out the World Cup website, and picked my team(s). USA, of course, I have to root for my home team. But in all seriousness, even I know the US is not a favorite team, so my true pick is Argentina! Now, will I wake up at the crack of dawn to see them play? Maybe!

Have a great weekend everyone!

xo,

Jenn Z

Libby chilling with her sheepie and Fat Cat tail

LA Arthritis Walk in Pictures

2010-06-07T18:10:00.001-07:00

This past weekend was the Los Angeles Arthritis Walk in Santa Monica, CA. Since I am on staff with the Arthritis Foundation, I lead the Arthritis Advocacy booth with several advocate volunteers! Even before being a "staffer" I participated/volunteered at Arthritis Walks all over SoCal. This was my 7th year supporting Arthritis Walks and, I think, this was my favorite year so far. I don't like to pick favorites, but the rest of the weekend I was smiling and happy from the after-effects of the Walk.

I made a little mental list of why this was my favorite Walk to date:

By the Beach
Good booth location
Volunteers that were awesome and enough of them
The cool banner (thanks Walk Staff!)
Remembered my camp chairs (even though I never sat)
Lastly, I was not in PAIN!!

Favorite quote from a coworker today....
"your booth was more popular than the free cotton candy"

setting up

Some of the crazy-awesome volunteers:
Melissa, Kristy, Katy aka Mama, and Sheryl

Our 1st Arthritis Advocate recruit, Mr. Salonpas

The amazing Laurie and Mikayla ~ they are my Arthritis Advocacy experts;
I admire their passion, their drive, and their willingness to do anything to get
the Arthritis Bill past in Congress.

Our Booth in action; our motto is in "Just 10" minutes you can make a difference...

Here is my Rheumy and me. Dr. Feldman's Team is called
"The Feldman Force";
it is fitting, as he has played several Jedi mind tricks on my arthritis.

Last, but certainly not least, is my hubby.
He was an official member of the Feldman Force and
the Advocacy Booth
(he tried on all the Advocacy Dress-up gear the night before).

Walk on,

Jenn Z.

June Gloom

2010-06-04T21:31:00.000-07:00

Hi there!

In Southern California we get this wonderful weather trend in June, parts of May too, where it is overcast for a majority of the day, mainly near the beach. I.LOVE.IT

It keeps LA cool, temp-wise, and I can still wear tights with my dresses and not look silly.

Some quick updates and then I need to watch my Friday night movie and head to bed, because bright and early tomorrow is the LA Arthritis Walk!!

Goals and stuff:

Exercise ~ Doing good, the short week threw my off a bit, but I still managed one gym night and home exercise x 2, plus over the 3 day weekend we went on 3 long walks with the pups. My legs and hips are feeling great; I have even noticed that my balance has greatly improved. Simple movements like picking up items on the floor and coordination has improved so much from pre-replacement ability.

Shoes & Socks ~ Same, but have only worn slip-ons the last 4 days. I started stretching more so I will see tomorrow if there is any improvement.

Dishes ~ See before and after photo. That was two hours ago. The short week messed with my schedule, on top of that, hubby is in finals mode and I am getting ready for our huge Walk tomorrow. So not a huge fail.

before

after

my Walk Booth supplies and goodies.
I run the Arthritis Advocacy Booth with 10 awesome volunteers; it is going to be so fun. We dress in patriotic gear and get Walk Participants to sign letters for our Senators and Representatives to raise awareness and advocate for additional government funding for arthritis.

hubby helping pack up

and playing dress up

All right that's it for now; hope everyone has a great weekend!

xo,

Jenn

Saturday Edition

2010-05-29T07:03:00.000-07:00

Goal Update

Dishes: Are done! Only one day went by and I did not do the dishes, but I did go to the gym and watched half of The Pianist instead!

Shoes & Socks: I can put on my left sock again, but just my left....why you ask? I mentioned this before that one of my arms is longer than the other, and it is my left! So, I have an easier time reaching that foot.

Exercise: Gym x 2, Pilates x 1, walking x 2 (so far)

Last night around 8:40 PM I read on my twitter that the Get Shaved food truck was in my town, down the street, but for only 20 more minutes.

Back story: Los Angeles has these gourmet food trucks that travel all over the LA area and are quite popular. Usually these food trucks feature just one to a few specialty items, like the Get Shaved truck serves only shaved ice (just like the kind you get in Hawaii!!), in like 300 different flavors and combos. There are also trucks dedicated to Grilled Cheese, Pancakes, etc. There are probably a least 50 different gourmet trucks in LA and they tweet were they will be and when; they also have a schedule on their website every week, but it is just easier to get that tweet and if I am nearby and want what they have, I head that way. I only follow a few trucks and so far, I have not been at the right place, right time, right mood for any truck (except last night). I soooo want to try the Grilled Cheese truck one day. But I'm patient and usually never have cash on hand. Case in point, last night we only had two cash dollars, so we all shared the smallest shaved ice known to man, but it was worth it!

Bostons only got a tiny taste, I swear

Now we are getting ready for an early morning walk/hike with the pups! Just finishing up my french press coffee. After a quick shower we will be on our way.

Hope you all have a wonderful (hopefully 3-day) weekend.

xo,
Jenn

Life is good, but busy, and mini-goals!

2010-05-24T23:00:00.000-07:00

Hi there!

Not much to report. My recovery is at a stand still. After the flare from hell I am able to stretch more and I have returned to the gym. I am not putting on my own shoes and socks yet...I was able to get on my left sock a week or so ago, but I currently cannot. I need to start seeing a PT to help with advanced stretching and exercises to assist with toning and working out the muscles that were barely used for years due to my inflexibility and arthritis.

In other news, work is increasingly getting busier and busier! I cannot wait for the summer: 2 Arthritis Camps, Arthritis Advocacy Month, and Arthritis Young Adult program planning. While many enjoy a summer of rest and relaxation I gear up for the busiest time of the year and look forward to it every year!

Since life is getting so impacted with work responsibilities, I decided to set mini personal goals. This week I plan to keep up with the dishes. We do not have a dishwasher, so all dirty dishes need to be done by hand. I can usually keep up with the dishes for a couple days or so, then they end up piling for days until one side of the sink is full and dishes NEED to be done. This week I plan on washing whatever is in the sink everyday for at least 10 minutes, if I get tired or fatigued I can stop after 5 minutes.

Another mini-goal is too exercise at least 6 days a week for 30 minutes or more. I have headed back to the gym on Tues/Thurs, Pilates at home on Mon/Wed, and walking on the weekends and at lunch 3x a week. Once it warms up, I plan to add swimming to the mix.

Time for bed, sweet dreams! xo

Jenn

Annoyance

2010-05-14T18:50:00.000-07:00

Annoyance. I have very few things that truly annoy me. One of my lasting pet peeves is when someone asks me as I am walking by "oh, what happened to your legs/foot?". Seems innocent enough and maybe I am a bit harsh, but to me this is the equivalent of asking a larger lady when the baby is due. I am all about education when it comes to arthritis; it's my job and I love to talk to people about it, but there's a time and place and a more courteous way to inquire about such things.

Example: I am walking down the street today on my way to lunch with 2 coworkers. As we approach someone who is trying to get signatures or signing up random people for something (of which I will never know), she looks at me and smiles, I smile back, because despite popular belief I am not bitchy all the time. This women working the corner then proceeds to look at my feet then back at me. The first sentence out of her mouth is, "What happen to your foot?" Before I said anything, so many thoughts were running through my head. I know, I know, she was just trying to be nice, but come on people; I am not walking around with a cast on my foot nor do I have crutches or a cane. So I simply said "nothing, nothing at all" and continued heading towards lunch. I usually quickly mention I have arthritis, but today I felt I did not need to justify a slight limp nor did I want to get into a lengthy conversation at lunch with a random stranger.

My coworker was the one who said it is like someone asking a larger person if they're pregnant; I thought that was a great comparison. My other coworker said she needs to take a course in Making Friends and Influencing Others; I totally agree. You don't start off a conversation with a stranger by asking why they walk like a gimp, come on!!

Also this is truly annoying, because it seems to only happen when I feel good. I had on some new flats (I know, not the best shoes to walk in), some skinny jeans (to show off those new hips), and a cute shirt with a peacock on it. Compliment me on my outfit or my hair or at least just say "Hi!" if you want to find out why I walk the way I do, anything but pointing out the one thing wrong with me!!

Okay, a bit of a rant, but it felt good to get it out. Thanks for listening.

Have a wonderful weekend everyone!

xo,
Jenn

"Mom went to Vegas and all I got was a Siegfried and Roy Baby White Tiger"

six months & six dresses...

2010-05-10T18:28:00.000-07:00

So, about month ago, Kyla over at Kyla Roma, wrote a post on revamping/updating her wardrobe with some great dresses. She created a challenge to buy a new or thrifted dress for six months and feature them on her blog. Immediately I loved this idea, because for years I have been trying to dress more "lady-like" and to just feel comfortable and normal in a dress. I blogged at an earlier date that as a child I was forced to wear dresses/skirts at my private school on certain days and that it just turned me off of wearing dresses and skirts altogether. As well, my "arthritis legs" have always bothered me and I like to hide them under pants. In high school I did wear skirts/some dresses, but usually they were accompanied by fishnets and Doc Martins-security blankets for my legs.

Last year I made it a New Year's resolution to wear more dresses/skirts, even if it meant wearing bright or black tights, but, unfortunately, there are only so many days you can wear tights in Southern CA; so I lost steam during the summer on my resolution and went back to my staple-pants (or jeans) pretty blouse, tank, or lightweight cardigan.

Anyways, I am joining the challenge, but a month late. So from May until October I will feature a new or thrifted dress.

Here is May's dress, brought with a Birthday gift card from my good friend, Sammie-Sam. Found the dress on target.com, clearance!

This is fun, I hope you enjoy!

Jenn

Mother's Day

2010-05-09T21:56:00.001-07:00

To my momma and all the moms who have impacted me throughout my life. You are all strong, amazing, smart, beautiful, and fun/funny ladies. You have made me the woman I am today and I thank you for your inspiration, encouragement, and support.

Momma and I-Hollywood Park 1984

US, Redondo Beach Pier 2010

Mom with a sexy new hair do, we usually get our hair cut together-fun mom/daughter time.
Not a day goes by that I don't think about my mom. I always think about our fun and silly times together, and about what a hard time I gave her when I was a teenager (sorry!).
Thank you mom for letting me throw socks and rubber bands at you (for fun, really) and making me laugh when I am sad. Your unconditional love has taught me how to love. Thank you for passing on your sassy attitude too!! Love you like a rock.

Mom being silly with onion rings

My Grandma, raised my mom and helped raise me. She is a tough lady yet her actions show what a big heart she has not only for her 6 children but even more so for her grandkids (at least the ones she can remember!!) I love her to pieces.

My sister, mom to three of the smartest kids ever, and she is pretty smart herself! I admire her physical and spiritual strength. I look forward to spending girl time her and comparing how much we spent on True Religion jeans! Love you sis!!

My mom and my aunt Mary Ann, sisters for life. My aunt is forever giving and making sure everyone is taken care of a true nurse by nature and profession. She amazes me with her strength and never ending heart. I love you auntie!

My in-laws and I, Cabo 2007
Irene is the best MIL a daughter-in-law could ask for. She is a beautiful woman inside and out and has always made me feel part of the Ziegler family. She picks out the cutest clothes for me and even offered her gorgeous wedding dress when I married her baby boy. I am one lucky girl to have Irene as a second mother! Love you Irene (and I will have to print this out since you do not have the internet!).

xoxo to all the Moms out there; your work is endless and I admire each and everyone of you.

3 months baby!!

2010-05-06T21:08:00.000-07:00

Well, I have made it through my first trimester with my new hips. I know, I know...I'm not pregnant with hips, but I was thinking about naming them. Any suggestions?

Life has been pretty grand around here lately! Last week, I flew to North Carolina for work; between all day long meetings and dinners and lunches, I was able to hit the hotel pool for some exercising and hot tub for some relaxation. I did not get to do any sight-seeing, no time and no transportation; the hotel was in a business district, so not much to see in walking distance. If I get to go to this Summit next year, I will be sure to drag my hubby along and stay the weekend so we can explore Chapel Hill and the beaches!

This past weekend we saw our oldest nephew in a high school musical: Joseph and the Amazing Technicolor Dream Coat. Mikey (our nephew) played Jacob, Joseph's father and we were quite impressed with our nephew's singing ability. It was fun, but we both got fidgety in the auditorium seats-it is uncomfortable on my hips to sit too long on a hard surface; it almost feels like my booty is missing a little cushion back there and my hubby's back was not happy either. I have not even mentioned yet in this blog my husband's chronic issues-that's a couple blog post to come. Let's just say we make an interesting pair.

Yesterday was my Theo's birthday! I took the day off from work and we had an adventure. We finally explored the Getty Villa, the original Getty Museum, which had been closed from 1997-2006 for renovations. They had an exhibit on Aztec art, including books that were made by the Aztecs after European influence, plus a lot of terracotta statues of gods/goddesses. This was very different from the rest of the museum that was mainly Greek and Roman pieces from centuries (we're taking BC) before the Aztec relics were made (1400-1500's). So it was very interesting to see such vastly different artwork. We then headed for a destination walk with the pups, watched Tuesday's episode of LOST, and then out for dinner to a Ziegler Family Favorite-Billingsley's in West LA. The Ziegler family has been patronizing this restaurant for over 50 years; Theo first took me here in 1998 and we have been going at least once a year if not more since. The manager has been the same and always remembers us! It is so neat!

Here are some photos from the Villa:

almost sitting with crossed-legs, first time in 10 years....YAY for new hips!

Fun times,

Jenn

PALS

2010-04-30T18:15:00.000-07:00

Wow, I just spent the last three days attending the National Patient Advocacy Leadership Summit (PALS) in North Carolina. It was pretty amazing, lots of great speakers, information, and ideas. I love attending conferences like this because they are so motivating and energizing and makes me feel great for choosing the line of work I d0! I am a lucky girl to be an advocate and even luckier to work with so many amazing advocates all over the Nation. At the same time I get to help others become advocates for themselves and loved ones. Fun stuff and, yes, I like to use the word advocate, a lot!

But I am missing these guys and girl:

hubby and spyke contemplate going back to bed

spyke waking up dad.....

Libby enjoying taking over my spot in bed.

I head back home bright and early in the morning!! Time to pack and get some sleep.

Chow,

Jenn

Standing Tall

2010-04-24T08:52:00.001-07:00

For someone with arthritis the act of moving from a siting to standing position at times can be the hardest part of the day; well for me anyways! I did not realize this so much until recently. For about 10 years this move has always been difficult due to my hip pain, after hip replacement surgery, it was difficult because I was healing, after healing I had a major arthritis flare-up. The flare-up not only made it hard because my knees were swollen and stiff, but I could not use my hands to push off anything because they, too, were swollen, stiff, and very tender. Standing has always been hard for me for some reason or another, but it was not until this last week I realized how hard it was and how when feeling good you just take it for granted you can hop up off a chair, sofa, dare I say, a toilet! Add to the fact I am 5'9" and standing tall becomes just a tad bit more difficult.

Well, I am extremely happy to report after my "emergency" visit to my rheumy and my new hips, of course, I can stand up with ease now! And it feels great, yet so unnatural. I no longer need to stack pillows under my butt before I sit on my lowish couch. I no longer need to first think about standing up, stretch my legs and then proceed to a half-way up position while I slowly loosen and straighten my body. Monday at work I kidd you not, it took me a good 5 minutes to stand up after sitting at my desk for an hour and 30 minutes.

I am not blogging for sympathy or anything like that; I just want to remember this week, the week I was finally able to stand and take it for granted.

YAY,

Jenn

PS-Update on my Shoes and Socks goal.....I am very close to being able to reach my feet. I can reach my ankles when shaving and my feet are just below them, so I am getting closer everyday. More daily stretching, and I should be able to put on my shoes and socks in no time!

Friday

2010-04-24T00:00:00.000-07:00

Hubby just got sucked into an online homework discussion, so I decided to briefly check in here.

So far, my body has responded wonderfully to the cortisone injections and extra infusion of Orencia, the magical, biologic drug that makes me not have to think about every move I make before making it (more on not taking everyday simple movements for granted later).
Enjoying my renewed feeling of bliss, I have shaved my legs-I can almost reach all the way to my ankles- painted my fingernails, and flossed. Surprisingly these tasks are near impossible and just plain uncomfortable when arthritis is rearing its ugly head.

Today Hubby washed all our snuggling blankets and pillows and picked up the house, swept and vacuumed. It is so nice after a long work week to sit in a freshly cleaned living room and enjoy the smells of freshness. He did good and made me popcorn with all my favorite toppings. We are watching the Six-String Samurai; it's our Netflix movie of the weekend. The movie is pretty silly, but it has great music by the Red Elvises.

We have a busy weekend scheduled-shopping, a baby-shower, laundry room fixing-up, and other little errands here and there. Then next week I head to North Carolina for a work conference called PALS-Patient Advocacy Leadership Summit. I have not been to this conference before, but my boss went last year and highly recommended it. To attend you need to be invited and basically already know someone involved in PALS; so I was lucky enough to be invited/recommended this year by one of our Board Members and my boss. I am very much looking forward to it; especially since I am feeling better.

That's all for now. Hope everyone has a great weekend!

Jenn

10 WEEKS!

2010-04-21T14:43:00.000-07:00

Today, it has been exactly 10 weeks from my Total Hip Replacement surgery and I can honestly say these hips feel great and like they're "mine". Nothing too weird happening down there either; everything feels very natural.

The follow-up appointment with the Physician Assistant was interesting. She kind of just smiled and nodded throughout the appointment and said everything I was experiencing was normal; even my hellish arthritis flare-up. She watched me walk, wrote me a note just in case I set off any metal detectors, and that was about it. She did not even look I the healing incisions; thank goodness they are doing fine.

Here are the official before and after x-rays:

On the arthritis front, I finally broke down and saw my rheumy yesterday. I have not had a flare-up this bad in about 7 years. Every time I thought it was letting up I would wake up a day or two later unable to move properly, and most of the time, it lasted the whole day. Eventually my hands were so swollen and painful they were frozen in "C" shapes! So, of course, it kept me from reporting back here.

My excellent rheumy decided my knees looked the worst of the bunch and thought some cortisone shots would help relieve the inflammation and the other joints would follow suit. I was not sure about my hand joints getting any relief from my knees being injected. On top of the injections, he decided to administer my Orencia infusion a week early to play catch-up from the infusion I missed due to surgery. After a quick call to the insurance (the office did this) I was hooked up to my I.V. and got poked by a needle for a 4th time that day, but it was so worth it!

I woke up this morning with so much less pain and inflammation everywhere! My knees are still a bit swollen, but my hands and elbows look so much better. I am taking it day by day, as I don't want to truly feel as if I am out of the woods just yet. Ask me in a few more days, or next week and then I can more accurately report if the arthritis is tamed.

I leave you with my spoiled little girl dog, Liberty, relaxing on our down comforter....can she look anymore comfortable?! Sometimes, I wish I could be one of my dogs for a day, oh to dream.

Cheers,

Jenn

My first Blog Award and passing it on!

2010-04-15T18:32:00.000-07:00

Thank you to sweet Stephanie at Bionic Pony for "nominating" me for The Fabulous Sugar Doll Blogger Award (that's a mouthful!). I am honored and have been racking my brain all day to share 10 unknown, interesting facts about me.

Now since I am fairly new to regular blogging and this is the first time I have heard/been nominated of such an award, being a geek that I am, I tried to find some information or history on T.F.S.D.B.A. But alas, my google search only turned up fun blogs about receiving said award and photos of scantly clad ladies (when I googled "Sugar Doll"!). So I will accept the award at face value and do as I am instructed!

Rules: Share 10 things one may not know about me and pass award onto 5 other bloggers!

1. I have a few tattoos; a piece with roses and birds on my upper back, cherries with wings on the back of my calves, and a skeleton dude on my inner ankle. The first two are traditional, Sailor Jerry style and the last is a Best Friends Tattoo with my bestie; we got them when we were underage. Originally, my mom hated them, but then she read somewhere that people with chronic pain tend to express themselves with tattoos and that made her feel better.

2. One of my arms is an inch or so longer than the other. So I actually have a better side when taking photos!

3. I used to work at a small time coffee shop/house, Boyer's Coffee, in High School with my best friend. I loved it, we, my co-workers and I, were so different, yet we had so much fun together. Also, it lead me to another great job where I worked for 3 years and met/worked with some of my favorite people to this day.....you know who you are;).

4. I met my husband at a show, at a place called the Alligator Lounge in Santa Monica, CA. I cannot remember exactly who was playing; as my eyes were on him more. I went there several times before and after for other shows, mainly ska, and they kind of blend together now. The Alligator Lounge does not exist any longer, but it has been a couple different restaurants that my husband and I have patronized on the anniversary of when we met, February 15.

5. I have been on 5 cruises: Hawaii and Mexico x 4. Three of them have been with hubby, and we are planning our 4th together in January 2011; a 15 day journey through the Panama Canal!

6. I have freckles, which do not show up to well on most photos. I used to hate them as a child, but now, of course, I love them.

7. My hair was shaved off for awhile in high school. I promise to put up pics one day. The older ladies in the water aerobics class I used to take with my mom, loved my shaved head and said I had the perfect noggin for my "look"!

8. I am afraid of waves and I have dreams about a large mass of water closing in on me all the time. Yet, I love the beach, cruises and I could never imagine not living near the ocean!

9. Gummi Bears and Cherry Coke are my favorite movie time snack, along with popcorn.

10. I want to participate in Kyla Roma's Six Months + Six Dresses. As a child, I went to a private Lutheran school and we had to wear dresses or skirts on Chapel Day. So for many wears I was turned off from dresses and skirts, because just for the mear fact of being forced to wear something on a particular day every week for 9 years made it so. Also, I am not a huge fan of the "arthritis legs"; basically, I do not have sexy knees (aka pointy knee caps). But, I have decided to get over it and wear dresses "damn it", I am a girl!

Okay, those are my 10 unknown things, time to pass T.F.S.D.B.A. on to 5 lovelies in Blogland:

1. Ashton Zyer is one of the coolest people I know in real life and in blog land. Seriously, you gotta read her blog about the Troll, haha!

2. Jen @ Metropolis Musings has not blogged for awhile, but I want to pass it on to her, because one day she will make the world a better place for joints!

3. Kerri @ A Peas of My Mind is awesome, but the award should be titled The Fabulous Sugar Tits Blogger Award for Kerri!!

4. Kyla Roma up there in the Canadian Prairie; she's a puppy mama like me and loves road trips too.

5. Ge @ The Babies......... My gym buddy (I promise to be back soon=). This is actually just her baby blog, but she still deserves an award.

This was a hard blog for me, even though I know I have not shared a lot on my newish blog, it was difficult to come up with 10 unknown, yet interesting facts. And, of course, many who know me in real life do know most of these facts!!

Anyways, I did it! Thank you so much Bionic Pony!

Jenn

Her Diamonds

2010-04-06T17:29:00.000-07:00

I know I am late to see this video and hear this song, but man-o-man; it brought tears to my eyes. Rob Thomas wrote this song about his wife of 10 years, Marisol, who has an autoimmune disease, similar to Lupus, but remains unnamed. I found this today exploring other RA Blogs. This post about Her Diamonds was most recently on Remicade Dream and, also, on Rheumatoid Arthritis Guy. I love how the video captures how it feels to have an autoimmune disease, trapped, frozen in ice, unable to move.

Yesterday, I wrote how my flare had subsided, but I spoke too soon. Today, I woke up and my hands and elbows were swollen and painful again, along with the oh-so puffy knees. I know this will not last, but it takes everything to continue my day like normal. I dropped my purse on the bus today, because I was having trouble getting up from my seat. Then, I thought "Thank God" people are so helpful, because there was no way I could pick it up from the bus floor without someone doing it for me.

I realized this afternoon having gone so long without an extended arthritis flare-up that I had forgotten how it feels. My hip pain was constant, but it was different since it was not actual disease activity, instead it was damage from prior disease activity, medication side effects, and normal wear-and-tear. Currently, I feel trapped and frozen in my own body, with a layer of pain on top.

xo,

Jenn

2 months

2010-04-05T19:58:00.000-07:00

Arthritis Family Weekend Camp 2009

Almost 2 full months since surgery!! If this surgery happened 10 years ago, I would probably still be in full recovery mode, relearning to walk and take care of myself; instead I am living my life pretty normally right now. I get up, get ready, go to work (by bus mainly), come home, think about picking/cleaning up a bit, watch my favorite shows, walk the pups, shower, exercise (well, more like exercise, then shower!), and blog, of course! 10 years ago, I am sure no one was blogging about getting their hips replaced and if there was, I would love to read that blog.

I am still experiencing a bit of an arthritis flare-up, but it was definitely subsided since Friday. Currently, my elbows and hands are not swollen, but my knees are still on the puffy side. Yesterday, after our normal walk in Palos Verdes with the pups, I could barely walk, but it was more my hip than knees. It felt like I could feel the stake that is hammered into my femur. It hurt to put weight on my leg, but after a good night's sleep that feeling went away! I will definitely bring this up at my follow-up appointment with the physician assistant on Thursday.

This weekend I head to camp!! It is the Arthritis Foundation's annual Family Weekend Camp at The Painted Turtle in Lake Hughes, CA. I have participated in every Arthritis Family Weekend Camp since its conception in 2006; I am lucky, it's my job! The weekend at Family Camp is amazing; bringing families together, who at times feel like they are the only ones dealing with this disease, find so much encouragement, hope and friendship. Just learning they are not the only ones is priceless. Also, this will be my first camp session of the year with my new hips...I hope they can handle it. Luckily, it is just a weekend long camp.

Time to get off the computer!

Love,

Jenn

Argh.....

2010-04-02T17:16:00.000-07:00

I don't wanna let this little occurrence of an arthritis flare-up bring me down. I don't wanna complain, whine, scream, cry, etc. But man, I have not had more than a few joints impacted in many years, currently I count 8 swollen, immobile joints. The only reason I am sitting here right now typing this is because it is too hard to get up, change out of my work clothes, and relax/nap somewhere else. Mind you I am going to get up; I am just motivating my brain and body to work together for the next 15 minutes to do 3 simple things: change, make a snack (which hubby will probably do), and get comfy with some ice.

That is my recovery update pre-weekend. Hopefully, I will have some great news to report on Monday.

P.S. I am no where near putting on my own socks and shoes. The hips are ready to give it a go, but my knees are saying, "Noo, nooo, noooo...."

I leave you with photos from last weekend, during our little walk in Palos Verdes with the Driscolls and the pups.

Peace out,

Jenn

more of the same, but still good.

2010-03-29T19:44:00.000-07:00

Good. I had a wonderful weekend.......lots of family, friend time. And movies: Alice In Wonderland.

Bad. Unfortunately, my little flare-up from the beginning of the week, turned into a full blown flare during the weekend, my knees, elbows, and hands became swollen, sore, and very hard to move. And the movie was sold out....but least we tried.

Good. I did not let my flare stop me from enjoying the weekend though; too many wonderful opportunities to partake in. Like seeing my sister, my nieces and nephew AND my best friend who lives in San Diego; she and her hubby came up to spend the whole Sunday with me and my hubby.

Bad. By Sunday night, it was truly hard to walk, touch my head (for like brushing my hair), get up and down, etc. So, hubby broke out the ice packs and I rotated icing my knees and elbows until the ice packs were warm. Which did not take long since my warm, swollen joints melted the ice in record time.

Good. Ice helped immensely. Thank you hubby. Felt better today, but took it easy. More ice tonight.

Even better. Tomorrow is my Orencia appointment. Orencia is a medication given intravenously to try to block arthritis on a cellular level. Sometimes between monthly infusions it can "run-out" and arthritis can wreck havoc on bodies, or the Orencia is just not working any longer. Who knows, there are so many factors why my arthritis is flaring right now. Hopefully, tomorrow's infusion will put my arthritis back in its place.

Best. Quality time with people I love.

All flared-up

2010-03-24T17:08:00.000-07:00

Just a quick update to my earlier post. The past couple weeks my hips have been feeling AMAZING! Which is great, but I guess my immune system is pissed off about my fake hips. I have heard it is common after any major surgery, pregnancy, trauma to one's body, a person with Rheumatoid Arthritis can experience a pretty substantial "flare-up". A flare-up is when the disease is activated and attacks joints, causing swelling, pain, loss of range of motion. I guess since my immune system cannot attack my hips anymore, it had decided to take it out on my knees and elbows. Both of which are pretty swollen and at times I cannot completely straighten. It is difficult to walk and get around quickly, but truly this is nothing compared to my hip pain prior to surgery. It is more irritating than anything and I know this arthritis "flare-up" will pass, my knees and elbows will eventually return to their normal size and the pain will lessen. It is a small price to pay for new hips, I guess. Time to break out the ice, again!

Check out my sexy knees: (could not get a shoot of my elbows by myself)

and, yes, that is a Boston behind me.

Also, my follow-up surgery appointment we postponed until April 8th! Oh well, I am going to call to see if I can start swimming. Just being in a pool when I am all flared-up helps so much. Hopefully, this weekend I will have a date with the pool!

P.S. I am pumped, because tomorrow I get to see She & Him play at the El Rey Theater in my old neighborhood!! Many, many thanks to my friend and gym buddy, Georgina, for getting the hook up, since this show sold out before we could even think about getting tickets!!

Time for some more LOST,

Jenn

6 WEEKS!

2010-03-24T07:09:00.000-07:00

It has been six weeks since surgery, which is a great "anniversary" date; during this time frame the professionals say you are more susceptible to dislocating your new hips. And guess what.....NO DISLOCATIONS, thank goodness! I had a couple of scares when moving my legs around, every so often, I thought I moved it too far or too much or crossed them(!) and that my hip ball was just slightly out of place. Mainly it just felt weird, my hips that is, (sorry the best I can explain). Most likely it was muscle pain or strain, cause usually within a few days my hips felt fine and I could move them again without any "weird" feeling.

Remember when I first posted after surgery, I mentioned my eyes weren't quite right. Well, I went to the eye doctor last week (yes, I call them eye doctors and not ophthalmologist) and after 2 appoinments, 6 vision tests and dilation, he could not figure out why I have a few "blind spots" post surgery. At first, we both (the doc and I) thought I was experincing a flare-up of my iritis (inflammation of my iris, basically arthritis in my eye), but there was no evidence of inflammation. So the best he could do was refer me to a retina specialist, which, of course, is not covered by my vision insurance, but will hopefully be covered by my regular medical insurance. Joy, nothing could ever be figured out simply, huh?

In other news, I have been walking around freely, no cane no more. It feels good. Tomorrow I have my 1st follow-up appointment at the orthopedics's office. I do not actually get to meet with my surgeon until my next follow-up @ 6 months, I think; this appointment is with the physician assistant. I am looking forward to it and getting the green light to swim, maybe hot tub!? Also, I can't wait to head to the physical therapist soon as well; my muscles need to be loosened up, a lot. They are pretty tight and I have been unable to put on my own shoes and socks still.

So, I decided to now measure my recovery in terms of putting on my own shoes and socks. I have no problem with slip-ons and flip-flops, obviously and I can almost take off my socks. Stay tuned, I will update on this regularly!

Cheers,

Jenn

Ain't nothing gonna break my stride

2010-03-19T10:08:00.000-07:00

Just over 5 weeks since surgery; it actually seems a lot more time has past. Both legs are feeling "normal", no more bone pain or muscles spasms. I am still pretty stiff and need to work on my range of motion, but it is improving a little day by day. My muscle are still weak, especially my inner thigh ones, but this week I started to hit the gym again!! Woot! It feels so good to be back; the only bothersome aspect of the gym is the looks I get. I guess I still need to work on my gait or my walk speed, because people love to stare at my legs as I pass them. Oh well, I am used to it; I have experienced a lifetime of "looks". I was just hoping with my new hips I would automatically walk like everyone else, which I truly knew would not happen overnight.

The title above, I stole from my Arthritis Friend. She posted this on Facebook yesterday and I commented with "nobody's going to slow me down", which was quickly followed by "Oh no...I've got to keep on movingggggg!!!!!" It was also noted that this should be the tag-line for our Young Adult Network group (a group of young adults with arthritis). I totally agree, it is a perfect motto for people with arthritis. The number one thing you can do for arthritis is moving.

Which leads me to the upcoming Arthritis Walks happening all over the Nation!! Follow THIS LINK to find an Arthritis Walk near you and sign up or support another walker.

Usually every year, I have a Team or join a Team at a Walk or three. This year I decided to streamline my Walk Teams. None at the Los Angeles Walk; I have to work it and it is much easier for me not to feel left out when all my friends and family are walking and I am busy in my Arthritis Foundation Advocacy Booth (see photo below, me in action).

working it @ the Arthritis mission/advocacy Booth!

So, this year I am encouraging all my friends and family to join my good friend Kerri's Team the "Dog Town All Stars", during the Palm Desert Arthritis Walk on November 6, 2010! I love this Walk, because it is during the Fall and Palm Desert is so pretty during the Fall, plus it is a very dog-friendly Walk! I have already joined the Team and cannot wait to head out in the Fall with the pups and possibly stay at the dog-friendly, Tiki-themed motel in Palm Springs.

The Caliente Tropics Resort is really cute, all updated features, and the tiki is all restored to match the original tiki-ness from when it first opened in the 60's.

Hubby and I at the Caliente Topic Resort in 2008, a very tiki experience

TGIF,

Jenn

Quiet Time.....

2010-03-15T17:03:00.000-07:00

equals a LOST marathon all weekend. We actually were pretty productive, but managed to watch a lot of LOST. We just started watching this show about a week ago via Netflix instant.....love Netflix instant!! Since we cancelled Cable TV we only watch shows through Netflix instant or I borrow for free from the the LA Public Library in Downtown LA; they have so many show choices and it is fun to explore this huge, beautiful library; I always find something new.

Friday night, we headed to Hermosa Beach for vegetarian fare at The Spot with my favorite vegetarian, Kristy, and Sammie & Dave. I had a very delicious Chili-Burger-veggie, of course. Saturday night, Theo cooked a traditional Irish meal; his brother, Michael, and wife, Gabbie, visited to enjoy the yummy corned beef and cabbage. Then we watched Dead Dead Fred and LOST; we made them watch the Pilot, so they can get hooked too.

Sunday morning, I made my way to Venice Beach for a lovely breakfast at Rose Cafe with my favorite arthritis friends. Once in awhile we like to get together to just chat, share and "bitch" about the disease. I put bitch in quotes, because all my arthritis buddies are always so positive, we actually never really bitch-bitch, mainly just catch each other up on the latest, like new hips!

After breakfast, I went back home to a couple episodes of LOST. Then, we headed to Manhattan Beach to take the pups for their weekly "destination" walk on our favorite wood-chip trail. While we walk the pups often around the neighborhood, nothing beats a nice car ride and walk away from the usual scents. Plus, they are usually much more tired from a destination walk than normal walk around the neighborhood. After our walk, I headed over to my Mom's; her hair needed a little TLC, just a quick trim (bangs) and color. My day ended at home, with Taco Bell, more LOST, two tired pups, and, of course, my hubby <3!!

It was a great weekend.

Love,

Jenn

4 weeks & less exhausted

2010-03-09T15:30:00.000-08:00

As of tomorrow it has been 4 weeks since my surgery. In a way it seems a lot of time has past and in another it seems not much time has past at all. Last week, I thought I was well enough to head back into the office. I only made it one day: Tuesday, and then had to work from home on Wednesday and on Thursday/Friday I took half sick days because I was so exhausted. Extremely exhausted. It was weird. I am not the most energetic person, but usually I have this ability to keep going at a constant pace (except, I am guilty of falling asleep during movies often). Last week, I literally could sleep at any time. So, unfortunately I did not blog much or do much of anything.

This past weekend was nice. My exhaustion lessened and I was able to enjoy a nice walk with my pups and hubby on Saturday, a lovely dinner with good friends on Saturday night, and a yummy lunch with hubby by the beach on Sunday, with a quick trip to the Ikea "as-is" section, a favorite pastime of ours! Nothing purchased, just window shopping.

Speaking of walking, I have been walking more and more without my cane, which is awesome! My legs still do not feel 100% mine, but I definitely feel stronger and more stable. In recent days I have been able to almost get dressed by myself. Still need help with shoes and socks, but I can get my lower garments on with some difficulty myself!

I am now back to work, in the office, catching up on many duties that can only be done while in the office, like mailing camp applications and I am loving that I have all my files at my finger tips! I feel like I am more in control of my work environment in the office...if I had to work from home for good, I know I could feel the same control there, but since I am not, I do not really have a "work area" at home. I usually just take over the dining room table and only have the bare minimum of work stuff with me. I also enjoy my coworkers, so it is great to be back!

Best,

Jenn

Exhausted

2010-03-05T17:44:00.001-08:00

I do have a post in draft about how it has been 3 weeks since surgery, but I am not done and I am tired, my legs feel weird, and I go from hot to cold all day. Plus, my legs are really hairy, I still need help putting on my underwear, and I just noticed recently that the two hip scars on my butt go in different directions (and you will never see a picture of this, ha).

Alas, I did just get an email from Hulu and the latest episode of The Office is ready for viewing and we got our Netflix movie today! So this is my excitement for the Friday evening.

A shout out to my mom for helping (actually doing) most of my laundry today and watching My Sister's Keeper with me this afternoon. I leave you with a photo of me and Spyke, taken just before a fondue party and a cute shot of Liberty, I love my babies.

Have a great weekend,

Jenn

2010 Arthritis Advocacy & Kids' Summit.....

2010-03-02T16:38:00.000-08:00

Is happening right now in Washington D.C.!!! Usually, I am one of the fortunate Californians who get to attend this amazing event. This year I am participating from my office chair and sofa, because even though these hip replacements of mine are not ready to walk the marble floors of our Capital, I can still send emails to my Senators and Representatives to make my voice heard!

And so can you!

Please take Just 10 Minutes of your day, follow THIS LINK to make your voice heard and support the over 300 Arthritis Advocates who are in D.C. this week trying to make a positive difference for the 46 million Americans, including 300,000 children with arthritis and related diseases. Remember, it takes Just 10 Minutes to help.

This is one of my most favorite events to attend, not only as an Arthritis Foundation staff person, but also as an individual with arthritis. When I first started at the Foundation I knew my job description entailed public policy and advocacy. I had studied this in college, so I had a general idea of advocacy, but it was not until I attended the 2007 Arthritis Advocacy Summit in Washington D.C. that I fully understood how much of a difference one can make as an individual and as a larger group. It was one of those experiences that will forever be with me. I was able in attend in 2008 and 2009 as well and each year, even though the experience was different, I felt the same, like I had a purpose and I was contributing to a positive change.

One of my favorite memories advocating in D.C. happened in 2008 when I was "running" through the Rayburn Building with a Family from Downey, CA. Here is an excerpt from my Summit Blog that year:

"The family I was teamed up with lives in Representative Lucille Roybal Allard’s District. During our visit with Debbie Jessup the Health Aide; Mikayla informed her the importance or the Bill, stating several reasons why there needs to be more money and support towards pediatric rheumatology. Mikayla, who is 9, did an awesome job, reciting the shortage of pediatric rheumatologists and showing Ms. Jessup the US map with highlighted states that do not have any pediatric rheumatologist. I think Mikayla did a better job at expressing the need than any adult advocate or lobbyist could ever do. From there, Ms. Jessup called Congresswoman Roybal-Allard and before we knew it, we were meeting and taking photos with the Congresswomen than racing through the office buildings- Rayburn, plus a parking garage, and finally hopping on the tram to the US Capital Building accompanying her to the House floor. Mikaylas’s parents and I were escorted to the “peanut gallery”, as Mikayla followed Rep. Roybal Allard to the Floor to vote for an energy conservation bill. It was an adventure, especially trying to keep up with the Congresswoman!"

That was a very exciting day; we were all over Capitol Hill and even managed to get photos with Senator Barbara Boxer during a Town Hall meeting! We did not finish our advocating duties until almost 5 PM that evening. I still remember how good dinner and a margarita tasted that night since we did not even have time to stop for lunch!

This year, I realized early on that I would not be able to attend the Summit due to my surgery. I am fine with that, but I still do very much wish I was there. One neat thing is that I have been able to follow the Summit from California through Facebook, Twitter, and blogs. I love experiencing the Summit through someone who is attending for the 1st year and receiving updates from volunteers who have attended with me in years past.

Check out Colleen's Blog; this is her and her families 2nd time attending the Summit (they attended in 2007) and I love reading about their experiences as returning participants, but still learning so much and having fun, meeting many new advocates. She sums up why we are there and what we need very well in her latest post

I wish all my fellow advocates Good Luck as they head to the House of Representatives tomorrow. Remember, please take Just 10 Minutes to participate in the Summit from your own computer, CLICK HERE to make your voice heard!

My "partner-in-crime", Laurie Miller and I at the 2007 Summit

Thank You,

Jenn

What's next?

2010-02-26T15:59:00.000-08:00

"Jenn, you've just received two brand spanking new hips....what are you going to do next?"

Jenn replied with a huge smile...."I'm going to Glen Ivy Hot Springs for FREE!!!"

Yup, that's right! After my mention in a earlier blog how my first shower in 6 days was so nice, it felt like the final shower you take at Glen Ivy, I was contacted by Jennifer Steinhart, Communication & PR Coordinator for Glen Ivy Hot Springs, Inc. She and the Glen Ivy Team offered me and my hubby 2 complementary passes to not only the Hot Springs, but also The Grotto, "A Social Spa Experience". Jennifer wrote that The Grotto's showers "are by far the most amazing ever".

Oh my gosh, I am so excited for this trip the Glen Ivy, you have no idea! I have been to Glen Ivy a couple times a year for the last 10 years or so. This place is a definite treat to one's body and mind. My favorite part is Club Mud and just relaxing in the nice warm Inland Empire sun. Hubby has never been as it is usually a girls' trip, being a spa and all, but guys are totally allowed and I always say I need to bring him one day!

Now I am not usually a spa type of girl, but Glen Ivy is different; it is like a playground for adults. Pools and hot tubs everywhere, plus mineral baths and MUD! After a day at Glen Ivy, my body is so smooth, relaxed, and stress free. Once my hip incisions heal, we will be heading straight to Glen Ivy for a day of rest, pampering, and enjoying each other company outside of our home.

Thank you so much Jennifer and The Glen Ivy Team! You definitely surprised me with this nice gift and we are very much looking forward to to our day at Glen Ivy.

me with the golden tickets (spa passes)!

A very happy girl,

Jenn

Cherry Eye

2010-02-24T19:43:00.000-08:00

Lil' Liberty

My sweet, little Boston Girl, Liberty had to be taken to the Vet again today due to her bulging eyeball a.k.a. cherry eye.....not fun. Boston Terriers are prone to Cherry Eye, since their eyes already bulge naturally on their own. I mentioned briefly in my last blog that her eye bulged out of its socket on Saturday; my hubby manged to gently push it back in. We still took her to the Vet on Sunday to make sure everything was okay. The Vet gave us some steroids and eye goop to help with the swollen tear duct and surrounding swollen area.

Well, today when hubby got home from school, I was resting on the couch with both pups, he noticed her eye was bulging again and her tear duct was very swollen. Not good, I guess I miss some things on pain medication, bad dog momma! So, I immediately called our Vet Hospital, Center Sinai (they're awesome); they told us to bring her in right away (which good, dog dad did!).

According to hubby, the Vet was able to gently massage her eyeball back into the socket, along with the swollen tear duct. She cannot play rough and chew on anything hard for a week or so. We put up all the dog ropes and tough toys. Liberty has only one soft toy to suckle on and that's a new fuzzy sheep hubby bought her on Sunday after the 1st visit to the Vet. I guess Libby is ready to throw on her lounge wear and snuggle with me on the sofa for the next few days in recovery mode!

Hubby and I have a theory that Liberty is jealous because of my hip surgery and is purposely popping her eye out for attention! Hopefully, this is the end of Libby's eye trouble. Please send some good vibes her way!

Jenn

One Week Home and Now Back to Work!

2010-02-22T18:11:00.001-08:00

Wow, I cannot believe I have already been home from the hospital one week and I started back to work today. Since it was my first day "back to work", I decided to wear a new outfit:

me at the end of the day, with my little "co-worker" peeking in!

Don't be jealous, but I will be working from home for a week, to get back into the swing of things, and see how much I can tolerate with my lowered energy level and pain. This lovely outfit was a "birthday" present from my aunt Mary Ann (she was not supposed to do birthday presents this year, but still hooked me up with some comfy lounge wear). I had to wait for the swelling to go down in my mid-section for the pants to fit comfortably. My hubby reminded me mid-day that it has a matching top; I was wearing a white tank and ruffle, black hoodie. I feel you still need to look good even when recovering. In the hospital I made sure my socks matched my hospital gown and my hair was as presentable as possible; remember, it's the little things.

Today went fairly well. I had many emails and several phone calls to return. Most of the day was spent catching up; tomorrow the plan is the same, but there is 3 back to back conference calls starting at 11 am until 2 pm. The conference calls will take up much of my day, because I still need to squeeze in time to walk, ice, exercise, and elevate my legs. Well, I can ice and elevate my legs during the conference calls!! Wednesday, I plan to head into the office for a bit, to pick up my mail and say 'Hi" to everyone. I truly miss the office and all my co-workers. I love my job and love my work environment....while working at home once in awhile is nice, I feel the energy and relationships at work are beneficial, especially in the non-profit sector.

Back to my hips. Today has actually been a great day pain and energy wise. I have been having a much easier time getting up and down from a sitting position and in and out of bed. Everyday normal task have been somewhat easier. I almost felt like I could put on my own pants today, but not quite; maybe within the next day or so. I catch myself walking without a cane often, but remember I still need it once I start waddling like a penguin.

Over the weekend, I had a minor panic attack when I sat on some ice too long and could not feel my hips properly. Prior to the ice incident my hubby had to take our little Liberty to the Vet because she expericed Cherry Eye on Saturday. During some rough playing her eye popped out of the socket due to pressure...hubby was able to "pop" it back in immediately. I mainly went along to the Vet for the ride and waited in the car with our boy dog, Spyke. It took a little longer than antcipated so I think sitting in the car for over an hour added to my leg discomfort later in the day.

Other big news, like I mentioned briefly above, the swelling in my legs, butt, and groin area has dramatically decreased! I do not think I ever mentioned much about my puffy lower half for fear it would take awhile to go away. When I first put on a pair of lounge pants when I left the hospital I was taken back how tight they were; I ended up wearing my husband's Adidas pants for several days last week just for the added room. If you know me in person, you know I already have a little extra back there and with all this added puffiness I have a little too much junk in my trunk! But, I am happy to report it is all balancing out. Hubby has even accidentally patted my butt in passing because I am looking more like my normal self everyday.

Overall, things are looking good and I am feeling great.

Cheers,

Jenn

The Cane "pimped"

2010-02-20T17:19:00.001-08:00

As promised, photos of my cane. Hubby added a layer of skull and cross-bone tape down the top half, because I'm bad-ass like that=). Near the neck of the cane is a black, ribbon bow, because no matter how tough I act, I am still a little girl on the inside. Hanging off the handle is a Boston Terrier key chain that says "I heart My Dog" in a little heart shape charm, because, well, I love my pups.

Many thanks to my hubby. I am loving my cane and am proud to walk slowly around with it for the next few weeks or so!

That's all I got for today. back to Marie Antoinette.

Jenn